Here we go again

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Per
Chatterbox
Chatterbox
Posts: 207
Joined: Tue 11 Oct 2005 12:38 am

Postby Per » Mon 06 Feb 2006 6:32 pm

GarethB wrote:For me succes was to have sight that could be corrected compared to pre graft where the sight was so bad it could not be corrected.

My right eye is close to being so bad it can not be corrected, but still I perservere as the risks are too high for an operation now. This time the op will be when I can not even see fingers hands or arms waved infront of my face.


Of course, one is coloured by personal experiences, and I understand very well that people hesitate when having a case far less severe than mine.

For me, there was no fingers nor hands visible pre op. There was a dim light and a vague conture of the nose skin....Correction had become impossible. Next step would have been a blind-stick and a dog.

So the worry laid rather in how long time I had to wait until getting the sight back. I followed instructions. And I am no on my way to getting the best sight ever as I can remember.

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Mon 06 Feb 2006 9:00 pm

Per

Well done! Your journey has been long, and no doubt scary at times, but you are making it out of the mist.

The light of your eyes restored, take care as you make your way in the world.

Andrew
Andrew MacLean

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Wed 08 Feb 2006 11:53 pm

Ah well, I've got some results now. (and numbers for those who understand them)

It seems that in the morning, the axis of my asygmatism is 110 degrees. In the late afternoon, it is 117.5 degrees.

It seems that such a small discrepancy would mean nothing to most people, but with a really high powered cyl it means everything.

I've had my frames bent, the lens itself carved to rotate a bit, and I've gained 4.5 of the 7.5 degrees. It is better, but definately not right. Guess I'll be ordering a new lens then :-(

Anyway, actually managed to go back to work today (first time since Dec 9th!) and could just about cope with a couple of hours at my monitor - deleting about 800 of the 2500 unread emails that have accumulated in the last coupld of months! Merry Christmas! :D
John

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Thu 09 Feb 2006 8:54 am

John

well at least you understand that your variable eyesight was related to a variable astigmatism.

And, buy the way, contratulations on being back at work!

I hope that your eye settles down to give you a consistent reading over the day.

Andrew
Andrew MacLean

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Thu 09 Feb 2006 9:14 am

Thanks Andrew,

I just find it odd that the corneal shape can change so much so quickly - but C'est la vie!
John

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Thu 09 Feb 2006 1:55 pm

Oui, c'est la vie; mais c'est aussi l'oeil!

did you have any residual sutures? I know that mine varies very slightly due to the varying tension on the remaining suture. that said, the variation is very slight and really does not impact in any significant way on my ability to see through my graft eye.

Andrew
Andrew MacLean

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Thu 09 Feb 2006 4:05 pm

No, I only had a single running stitch, and that was removed 18 months ago. All my problems have stemmed from the event which clobbered my endothelial cells to the extend that my consultant had advised me that the graft had failed.

Then, three weeks later, some of the cells had started working again. It's not enough for great sight, but it'll keep me going for a while at least!
John

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Fri 10 Feb 2006 7:25 am

Oh well, I'm flummoxed (yes that is a word!).

John, did your ophthalmologist suggest any reason why this may be happening? I am afraid that you are chalking up all sorts of 'firsts'. You were the first person of whom I heard whose astigmatism got steeper after the sutures were removed, and now you are the first person of whom I have heard whose astigmatism varies widely in the space of a day, only to start again the next day.

Your next challene is to become the first person of whom we have heard whose astigmatism goes from widely varying to stable at plus or minus zero.

Andrew
Andrew MacLean


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 22 guests