Fundraising

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Loopy-Lou
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Re: Fundraising

Postby Loopy-Lou » Wed 25 Nov 2009 10:32 pm

How about a 'I've got KC get me out of here' fundraiser :D

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Matt Allgood
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Re: Fundraising

Postby Matt Allgood » Wed 25 Nov 2009 11:02 pm

Continuing this train of thought - are there any 'celebrities' that have keratoconus?
"It takes so long, and so much work, to achieve simplicity." (Alfred Hitchcock, 1977)

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Andrew MacLean
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Re: Fundraising

Postby Andrew MacLean » Thu 26 Nov 2009 7:15 am

Um ... not sure about the use of the word 'celebrity', but I know of at least one politician in the UK with keratoconus and I remember there being some splash a year or two ago when an American actor announced that he had the condition.

Andrew
Andrew MacLean

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Matt Allgood
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Re: Fundraising

Postby Matt Allgood » Thu 26 Nov 2009 2:28 pm

Hi Andrew

Thanks for this - do you recall their names?

Send by PM if you prefer.

Regards

Matt
"It takes so long, and so much work, to achieve simplicity." (Alfred Hitchcock, 1977)

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GreigS
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Re: Fundraising

Postby GreigS » Thu 26 Nov 2009 8:37 pm

Mike, that is a good total of gift aid that we have benefitted from.

Slightly off topic but what we need is for one of those telly medical programmes to show someone with keratoconus ( as they have done almost everything else our turn must be soon) being advised about the group. This will be the best of both worlds for us.

Greig.

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Matt Allgood
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Re: Fundraising

Postby Matt Allgood » Thu 26 Nov 2009 8:59 pm

Yes!

Great idea Greig.
"It takes so long, and so much work, to achieve simplicity." (Alfred Hitchcock, 1977)

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Re: Fundraising

Postby kitty kat » Fri 27 Nov 2009 11:06 pm

watching Miami Ink and a guy had keratoconus and he was getting a bat tattoo

should consider Christmas cards for 2010, more members joined since last time they were done

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GreigS
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Re: Fundraising

Postby GreigS » Sat 28 Nov 2009 10:49 pm

Kitty Kat - I havent seen the show myself but I have heard from people I work with about the gentleman that was featured.

We need something like that to get the exposure of the group out to the wider population. Im sure that there must be some people out there who are just diagnosed with KCand dont know where to turn to for help & support.

Greig

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space_cadet
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Re: Fundraising

Postby space_cadet » Mon 14 Dec 2009 9:52 pm

Very true about medical programmes covering everything and anything (oftem more than once) yet not KC.. Perhaps some letters to script writters maybe in order?

re famous KC'ers, is it worth perhaps approaching any of them to see if they'd in somway be a patron/public face if you like of the group?

Lea
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May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Matt Allgood
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Re: Fundraising

Postby Matt Allgood » Tue 15 Dec 2009 12:21 am

Hi Lea

I'm more than willing for the KC Committee to write to famous KC-ers and scriptwriters. If you know of any famous KC-ers, grateful if you could PM the names.

Many thanks

Matt Allgood
Treasurer
"It takes so long, and so much work, to achieve simplicity." (Alfred Hitchcock, 1977)


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