life be for KC?.

[Louise Pembroke]

I can remember life before KC, I was diagnosed at 14 and it did impact on me significantly. My sight [in part] took away my first intended career and the early years were very traumatic. For me there is a difference before and after, I'm not being negative or pessimistic but I would have preferred to have been born without KC. I do worry about the future sometimes, I do find certain things difficult, it doesn't dominate my life but I remember how some things were easier before KC.

[Lesley Foster]

I can't remember what it was like without KC. I have always been shortsighted and have worn glasses from age 7, should have been earlier but no-one realised I couldn't see properly. I changed to contacts because the lenses in my specs were getting so thick they were heavy to wear and I was diagnosed with KC a couple of years later. If I hadn't asked for my specs to be checked (I could just about see with them) my KC probably wouldn't have been discovered until much later. In fact I have probably had KC since I was about 14 as that was when my then optician told me and my parents that I would be a good candidate for contact lenses.

Lesley.

[Andrew MacLean]

Emma

Four years: you certainly went the extra mile and then another few besides. There is an American poet whose name I cannot recall at this moment, who once said, "when a man shows you what he is like, always believe him the first time".

I think that she had lived in an abusive relationship and came late to the empowerment to say "on your way", (or words to that effect).

I am pleased tht things have worked out well for you.

Andrew

[kerrie phillips]

yes what you did was good, and brave. I do not know if i would have plucked up the courage for that.
My husband is not as bad as that but he does now say that i belong in a freak show in the circus.
this is because
i have neurofibromatosis, where i am covered in tumours all over and skin discolourations all over.
i have the KC and both are separate and unconnected.
I suffer hayfever
when i get preggy my platelets drop and i do not clot when i bleed
and now have a stenosed cervix due to having cancer cells removed. so cant really have more kids any way.
so you see he thinks i am a walking text book and belong in a freak show as i have so much wrong and am abnormal !

[Andrew MacLean]

Kerrie

I wonder what he thinks is the standard of "normality"? I certainly agree that some people are given an extra burden of illness to bear, and when they rise above each new challenge they exhibit a spirit that is well above any standard of "normal".

Maybe you belong where you are: in a place where you inspire hope in each of us and draw the admiration of us all.

Andrew

[lou]

Hi Kerrie

Your not a freak your just you and im me we both have one hell of a list of problems my list follows.....

KC in both eyes registered p/sighted
Severe eye allergies/sjogrens syndrome
Lupus (SLE)
Epilepsy (all my life)
Contracted MRSA when i had my 1st baby by c-section in 2005 also Prevotella Bivia in wound and it resulted in Necrotizing Fasciitis across my tummy plus Toxic shock syndrome etc 6 1/2 hour op then ICU 22 weeks later my tummy healed(and what a mess it is) leaving one ugly scar/hole (no more babies)

The point to this is for everything that happens to me makes me a stronger person and nothing will beat me i have always been a happy person and thats how i intend to stay.

My body may not look beautiful anymore but i am still a beautiful person inside and im sure you are to

Take care

much luv

Emma xxx

p.s. my middle names LUCKY

[Andrew MacLean]

Good for you , Emma

Absolutely spot on!

Andrew