UK Keratoconus Self-Help and Support Association

Hi my names Paul I’ve recently been diagnosed with Keratoconus don’t know much about all I know is the optician wants to put off me going to the hospital so he has given my glasses he thinks will last max 12 month 6 month realistically. Would love to here from people, just feeling bit worried bout it all

I’ve noticed no one is replying, why?

Hi Paul, welcome!
Check out all the information on this site, on the home page lots of useful stuff. It's good that your vision is still being corrected with glasses, have you asked the optician what comes next if he feels that your current glasses will last 6-12 months? Is he considering contact lens? If so, try not to worry, it takes time to adjust. The progression of KC varies in each person, you may be fine with glasses or contacts forevermore, not everyone needs a graft or experiences complications.
Keep asking questions, everyone here is really helpful and supportive. Check out the social and annual general meetings too if you would like some face to face contact with fellow KCer's.

Members usually reply fairly quickly Paul, many check messages everyday, so don't worry, if you post a message you will get a response relatively quickly, it just depnds who is online.

thank you Louise for the kind reply yes they are considering a contact lens but says because it takes time to get it right and sort it out so he wants to try and postpone it for as long as pos

Yes it can be harder fitting a KC cornea for a lens, it depends on how steep the curvature is. What is your sight like? Are you managing with your glasses to do the things you need to do?

not receved my glasses yet i have good vision in my left eye but very poor in my right eye

Don't worry about being referred to the eye hospital, they would have some extra machines for measuring your corneas which the high street optician doesn't have, and they can sometimes access a greater range of lenses [I know everyone's experience of NHS services vary].

Do you know what your visual acuity is Paul? The figures? ie 6/6 is normal vision

Paul

Its hard to say how long the glasses will last....may be 2 months may be 5 years...it all depends on how fast the KC progresses......so I wouldnt get to hung up on the time scales..as youll only know WHEN it happens.

The transition thereafter is to Contact Lenses....which there are a number of designs!...

J