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support group for Keratoconus with Cone rod dystrophies

Posted: Wed 03 Jul 2013 3:38 pm
by Mousework
ive been diagnosed with Cone rod dystrophie and i have Keratoconus. They said this caused the rejection to happen,

Are there any support groups which have Keratoconus with Cone rod dystrophies?

Re: support group for Keratoconus with Cone rod dystrophies

Posted: Wed 03 Jul 2013 8:27 pm
by Anne Klepacz
Really sorry to hear this, mousework - as if you didn't have enough with your KC problems. I don't think you'll find a support group that deals with both, and cone rod dystrophies are much rarer than KC. When I googled for cone rod dystrophy support, the main support group that came up was www.rpfightingblindness.org.uk though there are a couple others. All the best and keep in touch.
Anne