support group for Keratoconus with Cone rod dystrophies

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Mousework
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support group for Keratoconus with Cone rod dystrophies

Postby Mousework » Wed 03 Jul 2013 3:38 pm

ive been diagnosed with Cone rod dystrophie and i have Keratoconus. They said this caused the rejection to happen,

Are there any support groups which have Keratoconus with Cone rod dystrophies?
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Anne Klepacz
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Keratoconus: Yes, I have KC
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Re: support group for Keratoconus with Cone rod dystrophies

Postby Anne Klepacz » Wed 03 Jul 2013 8:27 pm

Really sorry to hear this, mousework - as if you didn't have enough with your KC problems. I don't think you'll find a support group that deals with both, and cone rod dystrophies are much rarer than KC. When I googled for cone rod dystrophy support, the main support group that came up was www.rpfightingblindness.org.uk though there are a couple others. All the best and keep in touch.
Anne
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