UK Keratoconus Self-Help and Support Association

In the summer I was wearing the new soft perm lenses which I found very good but after about a month of wear my eyes became intolerant to them, they became light sensitive and were stinging and watering a lot. Have any of you experienced this with soft perms?

I went to Maritus for two weeks and they were fine over there it seems that the air or may be pollen in the summer over hear in the UK caused a problem even though I do not suffer from hay fever. When I changed back to the GP lenses the problem went, but of course the GP lenses cause great discomfort thats when I tried the piggy back system which is not bad but I get them fogging and misting up quiet often .
Are there any new soft perms on the market that any of you have heard of ?
many thanks for your help .

Paul

Paul

I was never able to wear soft perms because they just tightened onto my eye, which became inflamed. It felt 'hot'. I think that the light sensitivity is an artifact of light being mis-directed onto surfaces within your eye, other than the light sensitive cells at the back.

This seems to be common in KC, Our corneas don't focus light properly, but can scatter it. This gives rise to pain, and in many cases photophobia.

I wear a rather splendid broad brimmed hat to shade my eyes from the light, and in very bright weather I wear some light excluders that I bought from the RNIB's website.

Not everybody would feel comfortable striding about in a Fedora in the winter and Panama Hat in the summer. Most KC people find their own solution.

all the best

Andrew

I had worn softperms for a year and had got on very well with them until the point were my KC progressed and the soft perms were no longer suitable. I was no longer able to wear softperms after a year. They were only available in i think 3 diameters and even the largest diameter became tight and uncomfortable so my wearing time reduced to 8ish hours.

My eyes would feel sore for a few days after continuously overwearing my softperms, aswell as any other lenses I have worn. I would wear the soft perms for up to 12-16 hours continuosly for about 7 days and for the next 3 days my eyes would feel sore that i would not be able to wear them. You shouldnt wear your lenses for more than 8-12 hours even if it does feel comfortable beyond that time....that is if you do overwear them.

Yep, I wear softperms and have a lot of trouble from light sensitivity - it varies from day to day, but gives me similar problems to those mentioned above.

I too get around it by wearing a large brimmed hat (when necessary) and by generally avaoiding bright light.

It is annoying, but however, I find it a lot more tolerable than wearing the small lenses which I just did not get along with at all...

Lock

Lock

good to see you! We ought to form a support group for people who wear hats (none too fashionable in the modern world!)

Actually the hat is also practical in the rain

Andrew