UK Keratoconus Self-Help and Support Association

Hi all... i'm new, from uk, 35 and had Keratoconus (diagnosed) for about 5 years. Never really felt the need to be on anything like this until i woke up this morning and didnt have the ability to see out of one of my eyes due to hydrops having occured.

I use hybrid lenses, part soft part solid gell, and only wear them in my left eye as my right was always too badly scared to get any benefit from using one anyway, however now the right one is clouded and effectively blind im curious to see how hydrops has effected people, anyone got any experience? do you still drive? im a massive petrol head and would be gutted if this effected my driving... and my work.

thanks for reading, hope i can get some answers, cheers.

Hi I'm pretty new here too, welcome.

I also drive as part of my job, I can only drive with contacts and sunglasses. As for night driving I do it although I shouldn't as haloing is really bad, a lot of night driving for me is guesswork but I have to do it or lose my job.

Jehuty

Welcome to the forum! I wash't able to drive for a bit and now I can drive again. Take heart

Andrew

Cheers guys, bit of a typo in first post, I'm 25 not 35. Oops.

Anyway, went for a drive round the block earlier, doesn't seem
Much off what I'm used to and still have some peripheral vision. Off to addenbrooks now do they can tell me lots of things I already know