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Graft failure
Posted: Thu 15 Dec 2005 8:23 pm
by John Smith
Following on from my
Foggy Vision topic, I saw my consultant again today, and the news is not as I'd hoped for.
It seems that, following my 7 rejection episodes, the endothelial cells on the back of the cornea are packing up - at least, not enough of them are doing their job.
So I'm now off the hourly Pred Forte drops, and back on FML 4 times a day, and staying on Timolol to keep the pressure down, as it is currently 26.
My consultant explained that she's now weaning me off the steroids that I've been on for the last 4 years, with a view to a re-graft sometime next year.
Posted: Thu 15 Dec 2005 8:34 pm
by jayuk
Oh no..thats not what you wanted to hear !!
Have you had a regraft on this eye before?....
What is the current state?...are you still having the same symptoms?....
Posted: Thu 15 Dec 2005 8:48 pm
by Sweet
John, am really sorry to hear that. Am glad that you are off hourly drops though, and FML isn't so bad in that it doesn't really sting or 'taste' foul!
Regrafting sounds like a major thing, and i can only guess how hard that would be to go through it again. Am really hoping that that will work though. Keep us informed, and i have noticed my little graphic change! LOL!! Hehe i got it before Christmas! LMAO!!!
Sweet X x X
Posted: Thu 15 Dec 2005 9:41 pm
by Per
Just want to wish you the best now, John, this was not good news at all! I have read your updates recently. Hope they find a way to solve this for you, giving you the highest priority and eventually a new cornea that ajusts better to your eye if the graft does not clear up.
Posted: Thu 15 Dec 2005 11:53 pm
by ChrisK
I'm sorry to hear that John.
I just hope that this time you won't suffer any rejection episodes.
I'll be thinking of you.
Posted: Fri 16 Dec 2005 12:13 am
by Drew Radcliffe
John
I was really sadend to read such rough news.
I am however confident that you will deal with it with your normal helping of faith and good humour.
You know where we all are.... Egging you on!!!! all the way.
D
Posted: Fri 16 Dec 2005 9:39 am
by Susan Mason
Hello John
Sorry to hear your news.
I will keep my fingers crossed for you.
I suppose from the positive side at least they now know what the problem is and can start to take steps to attempt to make things better for you.
You must feel really fed up, we could definately all do with some santa magic wishes.
best wishes
Susan
Posted: Fri 16 Dec 2005 2:19 pm
by james mckinlay
HELLO JOHN SORRY TO HEAR ABOUT YOUR REJECTION I MYSELF HAVE HAD 6 REJECTIONS THIS YEAR AND WAS ON HOURLY DROPS ITS NOT MUCH FUN I HOPE YOU ARE SUCCESSFUL THIS TIME AND ALSO THAT ITS A LONG HAUL FOR YOU. IF YOU WOULD LIKE TO DISCUSS IT JUST MESSAGE ME OR ANYONE NEEDING ANY INFORMATION ON MY EXPERIENCE OF GRAFTS AND HAVING IT REJECT PLEASE EMAIL ME
jgm1981@yahoo.co.uk
i hope it works out keep posted and happy christmas chin up m8
Posted: Fri 16 Dec 2005 3:06 pm
by jayuk
James
May be an idea to write something about the episodes you have had in a post?..reason being is that I think that kind of real world experience is soo valuable to those that have had a Graft and MAY be going through a Rejection etc?..I guess similar to what John did with his initial post?
Unless of course you dont want to...in which case I completely understand..
Posted: Fri 16 Dec 2005 5:39 pm
by Sweet
I think it would be a great idea as well, as it would be very interesting to read and also give us some advice on what to look out for. I know we get advised on this, but it is so easy to forget what signs and symptoms could show a rejection and so your experiences would be really helpful!
Of course as Jay said, this is if you want to, as i can understand that posting here about six rejections would be hard. So will let you decide, hehe, byeeeeee!!
Sweet X x X