K C and a lazy eye

[kayevans]

I was diagnosed with KC three years ago in my Right eye, and have a very lazy left eye with hardly no vision. I am a self employed graphic designer/sign writer. I had CXL 12 months ago but my glasses are no longer giving me good enough vision to read a PC. I have been unable to find a suitable contact lens as yet. I would appreciate anyone in a similar position to share their experience with me, or if anybody knows of any other contacts that are successful with viewing computers etc. I have an appointment this afternoon and intend to discuss Kerasoft IC with my optician as the next possible option.

[longhoc]

Hi Kay

It sounds like you've tried Rigid Gas Permeable, or RGP, lenses already (that's usually what they offer us first off -- RGPs are the most common treatment for Keratoconus). They are though not without problems. Vision is usually good but comfort can be awful ! It's all down to getting a good lens fit which requires a very skilled optometrist who is used to dealing with Keratoconus.

If you can't / haven't been able to get an RGP design that works for you, then yes, soft lenses for Keratoconus such as Kerasoft IC or Kerasoft 2 or 3 can give excellent results for some people. There's also scleral lenses which are a very wide diameter lens and semi-sclerals which are half way between a standard RGP and a scleral. There's also hybrid lenses which are, cutting a long story short, a bit like an RGP with a soft lens outer "skirt". And then there's the so-called "piggy backing" which is an RGP lens sitting on top of a soft lens.

Each lens type has its own plus points and minuns points. Unfortunately, the only true way to find out what might be suitable for you is trial and error.

As I say, having an experienced optometrist is essential really, do you know if you're going to a specialist optometrist who is used to dealing with Keratoconus patients ?

Best wishes, and good luck !

Chris

[munster]

Hi,

I have a very similar experience to you. I'm left eye dominate, and have a lazy right eye from a childhood squint correction.

I can't really tolerate RGPs. I have been using Kerasoft 2's for around 6 years now. I'm going to collect a pair of Kerasoft ICs on Friday 8th. I also have a 15mm dia. Kerasoft 3 coming a week after. Its all trial and error. The Kerasoft 2s are struggling to give me good vision now. So i'm trying to find a new lens.

The consultant told me that I'm really coming to the end of lens correction and that I should now start to look at corneal grafting. So I'm going for a 2nd opinion at Manchester Eye Hospital to make sure I have exhausted all my options.

[dish789]

Hi Kay,

I also have a lazy left eye and i have tried RGP's and Kerasoft lenses but can't get decent vision as i get severe ghosting/double vision with them.

I am waiting to see the NHS consultant and i am going to discuss CXL with him as i want to stop the progression and possible be able to wear lenses again. keeping my fingers crossed.

I really hope you get lenses to fit and suit you and it can take a while but hang in there

Paul