Specialist said graft for Charlotte looking likely
Posted: Mon 04 Mar 2013 5:37 pm
Hi,
Well Charlotte saw Mr Stewart at Hull Eye Clinic this morning. We had a long talk with him (prob over ran re clinic times
) He said that he expects her eye to remain cloudy for a while yet (no surprise there) and that he would expect the scar to be "right in the middle" with "an opaque vertical scar" so basically he has suggested a graft for Charlotte when the hydrops has cleared. Towards the end of this year, beginning of next.
Hub and I had half expected him to suggest graft so..............
Back in 2 weeks time to see how Char is doing. Bless her, on antibiotics for chest infection so not happy at all and miffed that she is missing day centre again.
I don't know how I got through "the stack of ???" that I had mentally prepared, such was the lump in my throat - just swallowed it down and told myself not to let Char see me upset (save it for later) anyway, I got there.
Lots to think about, maybe she'll heal ok and not need a graft but Mr Stewart seems sure she more than likely will. I am keeping in my mind the fact that sometimes acute hydrops can actually turn out ok and a graft maybe avoided (read it on here), its just that "right in the middle" comment that keeps ringing in my head. He's grafted people with Down's syndrome before and said it's the time after graft that's the one to watch as opposed to the actual surgery itself given the individual/management/behaviours/etc etc. I totally get what he's saying.
Not written in stone yet but suffice to say, we've had better days.
Well Charlotte saw Mr Stewart at Hull Eye Clinic this morning. We had a long talk with him (prob over ran re clinic times
) He said that he expects her eye to remain cloudy for a while yet (no surprise there) and that he would expect the scar to be "right in the middle" with "an opaque vertical scar" so basically he has suggested a graft for Charlotte when the hydrops has cleared. Towards the end of this year, beginning of next.Hub and I had half expected him to suggest graft so..............
Back in 2 weeks time to see how Char is doing. Bless her, on antibiotics for chest infection so not happy at all and miffed that she is missing day centre again.
I don't know how I got through "the stack of ???" that I had mentally prepared, such was the lump in my throat - just swallowed it down and told myself not to let Char see me upset (save it for later) anyway, I got there.
Lots to think about, maybe she'll heal ok and not need a graft but Mr Stewart seems sure she more than likely will. I am keeping in my mind the fact that sometimes acute hydrops can actually turn out ok and a graft maybe avoided (read it on here), its just that "right in the middle" comment that keeps ringing in my head. He's grafted people with Down's syndrome before and said it's the time after graft that's the one to watch as opposed to the actual surgery itself given the individual/management/behaviours/etc etc. I totally get what he's saying.
Not written in stone yet but suffice to say, we've had better days.