Specialist said graft for Charlotte looking likely

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Charlottes mum
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Specialist said graft for Charlotte looking likely

Postby Charlottes mum » Mon 04 Mar 2013 5:37 pm

Hi,
Well Charlotte saw Mr Stewart at Hull Eye Clinic this morning. We had a long talk with him (prob over ran re clinic times :wink: ) He said that he expects her eye to remain cloudy for a while yet (no surprise there) and that he would expect the scar to be "right in the middle" with "an opaque vertical scar" so basically he has suggested a graft for Charlotte when the hydrops has cleared. Towards the end of this year, beginning of next.

Hub and I had half expected him to suggest graft so.............. :cry: :cry: :cry:

Back in 2 weeks time to see how Char is doing. Bless her, on antibiotics for chest infection so not happy at all and miffed that she is missing day centre again.

I don't know how I got through "the stack of ???" that I had mentally prepared, such was the lump in my throat - just swallowed it down and told myself not to let Char see me upset (save it for later) anyway, I got there.

Lots to think about, maybe she'll heal ok and not need a graft but Mr Stewart seems sure she more than likely will. I am keeping in my mind the fact that sometimes acute hydrops can actually turn out ok and a graft maybe avoided (read it on here), its just that "right in the middle" comment that keeps ringing in my head. He's grafted people with Down's syndrome before and said it's the time after graft that's the one to watch as opposed to the actual surgery itself given the individual/management/behaviours/etc etc. I totally get what he's saying.

Not written in stone yet but suffice to say, we've had better days. :( :(
"Promise me you'll always remember that you're braver than you believe, you are stronger than you seem and smarter than you think" .....Winnie the Pooh

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Anne Klepacz
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Re: Specialist said graft for Charlotte looking likely

Postby Anne Klepacz » Mon 04 Mar 2013 6:17 pm

The hard part of hydrops is the waiting. But at least it means you don't have to rush into any decisions. And the thing about the time after the graft being the time to watch and make sure you keep to the drops regime is true for all of us. I've probably mentioned the site for people with learning disabilities and KC before, though it's recently changed it's name to www.seeability.org If you put keratoconus into the search engine there, there's lots of useful stuff about KC including grafts. There was also a video about a young man who has had a corneal graft, but I couldn't find it when I looked just now.
All the very best to both of you - hope Char shakes off her infection quickly.
Anne

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Charlottes mum
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Re: Specialist said graft for Charlotte looking likely

Postby Charlottes mum » Mon 04 Mar 2013 7:36 pm

Anne Klepacz wrote:
All the very best to both of you - hope Char shakes off her infection quickly
Anne


Hi Anne, thanks for that link. I will take a look.
Char hasnt had a chest infection for ages til now bless her!
Angie
"Promise me you'll always remember that you're braver than you believe, you are stronger than you seem and smarter than you think" .....Winnie the Pooh

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Re: Specialist said graft for Charlotte looking likely

Postby holmes » Tue 05 Mar 2013 9:18 pm

I wish Charlotte all the best, it must be a very confusing time for her and a very difficult time for you. I hope that all goes well for you all!

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Keratoconus: No, I don't suffer from KC
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Re: Specialist said graft for Charlotte looking likely

Postby Charlottes mum » Tue 05 Mar 2013 10:29 pm

Thank you, she's getting a bit fed up now tbh :(
"Promise me you'll always remember that you're braver than you believe, you are stronger than you seem and smarter than you think" .....Winnie the Pooh


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