Frustrated
Posted: Fri 01 Mar 2013 6:55 pm
Hello,
I'm after some advice about KC and CXL.
Basically i was diagnosed with KC in September after my optician refered me this time last year. I have a lazy/weak left eye so i rely heavily on my right eye.
I have been going back and fore the hospital for contact lens fitting and didn't really get anywhere. The opthmologist found it difficult to get me a fitting and i found it give me double vision/severe ghosting. He said this was because my cone didn't match the back of the eye and was irregular. Even though they were uncomfortable i would have stuck with with had they given me good vision. I decided to try Kerasoft but unfortunatley vision is blurry with these. I wear glasses to get by but i am even finding them at the moment.
I am now at my ends tether and dont know what to do. My confidence is totaly shattered and i find evry day a struggle. I can get by indoors (as long as i am away from windows) but outside i really struggle and i don't think it will be long before i have to give up driving.
I am due to see the NHS consultant in march but when i rang today they said that they are running behind and it could be may before i see him.
The way i feel at the moment is that i am trapped and i want to have CXL to stop the progression and possibly make my eyes better or enable contact lens wear but i want to speak to the consultant for advice.
I have booked an appointment with the optician next week and i am hoping they can adjust my glasses as i feel when i frown then i can get a bit better vision but this is a big hope. I am also thinking of going private to get some sound advice as i feel a bit isolated and angry.
can anybody answer the following questions:
1. Do i need to see my consultant before i look into CXL?
2. Is there anywhere someone can recommend for this treatment? I live in Swansea
3.If i go private will i lose the NHS support
4.How much will this cost in one eye roughly?
Sorry i have so many questions but my head is really spinning at the moment. I am going on holidays in 3 weeks to america and i should be looking forward to it but i am anxious about my sight.
Any help or advice is appreciated
Many thanks
Paul
I'm after some advice about KC and CXL.
Basically i was diagnosed with KC in September after my optician refered me this time last year. I have a lazy/weak left eye so i rely heavily on my right eye.
I have been going back and fore the hospital for contact lens fitting and didn't really get anywhere. The opthmologist found it difficult to get me a fitting and i found it give me double vision/severe ghosting. He said this was because my cone didn't match the back of the eye and was irregular. Even though they were uncomfortable i would have stuck with with had they given me good vision. I decided to try Kerasoft but unfortunatley vision is blurry with these. I wear glasses to get by but i am even finding them at the moment.
I am now at my ends tether and dont know what to do. My confidence is totaly shattered and i find evry day a struggle. I can get by indoors (as long as i am away from windows) but outside i really struggle and i don't think it will be long before i have to give up driving.
I am due to see the NHS consultant in march but when i rang today they said that they are running behind and it could be may before i see him.
The way i feel at the moment is that i am trapped and i want to have CXL to stop the progression and possibly make my eyes better or enable contact lens wear but i want to speak to the consultant for advice.
I have booked an appointment with the optician next week and i am hoping they can adjust my glasses as i feel when i frown then i can get a bit better vision but this is a big hope. I am also thinking of going private to get some sound advice as i feel a bit isolated and angry.
can anybody answer the following questions:
1. Do i need to see my consultant before i look into CXL?
2. Is there anywhere someone can recommend for this treatment? I live in Swansea
3.If i go private will i lose the NHS support
4.How much will this cost in one eye roughly?
Sorry i have so many questions but my head is really spinning at the moment. I am going on holidays in 3 weeks to america and i should be looking forward to it but i am anxious about my sight.
Any help or advice is appreciated
Many thanks
Paul