UK Keratoconus Self-Help and Support Association

hi my name is david.I have had Keratoconus in my left eye for about a year now.

I have just be given hard rigid lens to try out.I have notice that it has made my vision in my left eye a bit better but it is still bit blurred in the left eye.

Does anyone know if after awhilst wearing a lens the vision gets better?

Also is anyone interested in raising money for research into Keratoconus?

Let me know if you are.I was thinking of doing a sponsered event.Ideas welcomed

great idea i am organising a guess the birthday to win a lifesize shark teddy it would be great to raise funds im up for helping

hi james,
thanks for your reply.I was actually thinking of doing a sponsered abselling event.Are you interested in doing this? to raise money for Keratoconus?

Let me know,ask anyone else you know aswell.

Let me know if you have any other ideas.

Or we could arrange sponsered walk,I had a look on the Keratoconus website and they did a sponsered walk last year.

If you know the person in charge of the sponsered events for raising money for Keratoconus then please contact them.

We could also get the local paper involved.

We need to raise money for Keratoconus and help thoses who suffer from Keratoconus.

sounds great but one problem i stay in scotland but id do anything really 2 raise funds i have contacted my local newspaper to see about doing a article on k.c we should try and get in touch with local schools and do a presentation to let pupils know the signs and also educate the teachers a bit and let them know how k.c effects people.

what we should do is split into regional groups to raise funds and total the funds raised by each section.

When you say "for KC research" where would you expect the money to go?...to this website?...

I think there are two reasons we could do something

a) to raise money for a research unit on KC
b) raise money for this website (running, etc)

well I was thinking that the money go to a Keratoconus unit more than the website.

Or maybe a little bit of money can go on the website.

Anyway are you interested in doing some sort of sponsered event to raise money for Keratoconus which area are you from?

Hello all,

Just a quick note to make it clear that the financial costs to the Keratoconus Group charity for this web site are virtually nil. In fact, I don't think a single pound has come out of the charity's coffers for the website since I've been running it (about 2 years now).

However, that does certainly not mean that the charity itself doesn't turn it's nose up at donations - all of the money raised for the charity goes towards newsletters, booklets, conferences and producing the conference proceedings (and this year, the DVD). We do make money from selling the booklets etc to hospitals and opticians, and we also receive some funding in the form of grants.

But we could always make good use of any additional money raised to help inform and educate keratoconus sufferers and those around them.

If you do want to make a donation, please consider using the Gift Aid form - as the charity can claim back your income tax payment too.

As usual, John is being too modest - the website may not incur any financial costs, but the time he puts into it (for free) is beyond price! But as he says, we do incur costs when we organise conferences, produce booklets and factsheets, send out mailings to all our mailing list members. So any offers of raising money for the Group are very welcome and we have a template for a sponsorship form which we can provide for anyone who wants to organise a fundraiser (we used it for people who ran the London Marathon for us, who cycled from Lands End to John o Groats, and who walked the Thames Path). But what none of us involved in the Committee have time for at the moment is to actually organise a fund raising event. All of us have full time 'day' jobs, so what we do for the group (conferences, publications, replying to letters, phone calls, e-mails etc) is done in our 'spare' time. Our current priority is to produce material from the 2005 Conference and make that available for everyone. So we'll support any fund raising efforts, but as to the organisation - it's over to you guys!
Anne

Ohhh sponsored events sound like fun, although i can't do anything too adventurous or i think my surgeon would kill me! LOL!!! Hhmm, time is a BIG word i know in healing!!!

let us all know what you're thinking, and a big thank you to everyone who looks after this place and all the hard work that goes into it!

Sweet X x X

I have abseiled a number of tall buildings for sponsorship (the last time 3 years ago just before I was diagnosed ironically for the RNIB).

I would also like to organise (or help organise! that's a plea for help) a sponsored walk, and have been mentioning to Anne a Northern take on the Thames Path walk (not quite as North as Scotland I was thinking the Mersey River rather than the Clyde!).

I will contact the Agency overseeing the Mersey and see how far I get. I will post a new post soon to ask for volunteers/sponsors and to raise awareness of the Event which will hopefully raise awareness of teh Group and the Condition as well.

T