UK Keratoconus Self-Help and Support Association

Hi,

I pose this question because I have a few issues, that the lens fitter, optometrist and consultant can't answer.

Some days, my back up glasses work relatively well. I can read the computer screen with just a small amount of ghosting.
The day after, It will be blurry, more ghosting and unreadable, with the same glasses.
In fact, some days can see a vision deterioration over 6 hours.

Likewise, sometimes when I wake up my eyes feel ok. I go to insert my lenses and my left eye gets all very sore, that I'm unable to use a lens in that eye for several hours (its always the left, never the right eye).
This seems to make my vision with glasses go horrible.

Yet the experts say that my vision with these glasses is ok for the driving standard. Yet I need to wear my older pair of glasses over the top of my normal pair just to read the computer screen :S

This all leaves me somewhat confused.

I am not a specialist so dont take my words for granted.
First of all, do you have your own corneas or transplanted ones. I noticed way back when i used lenses my self that my transplanted eye where somewhat stable, I could use a lens and right after i took it out i could use glasses. That was not the case in my left eye which was not transplanted. The reason was because of the lens pushing the corneal cone, the cone then moves and becomes somewhat stable again 1-2 weeks if you have not worn a lens.

This could be the reason but i dont know for sure.

Grim10 wrote:First of all, do you have your own corneas or transplanted ones.

I still have my own corneas.

Then changing between glasses and contacts could be the reason why you feel vision is altering

So its just random how my corneas will be when I wake up in a morning, after 7 hours without lenses in.

Doesn't hold much hope for wearing glasses 1st thing in the morning, if I want to rest my eyes.

eyes get tired throughout the day so it is not suprising over 7 horus you notice a difference of vision if you didnt id be suprised more than anything!!

different lighting, pollution levels, physical health can also affect your vision.

I have the same effect, I try to wear glasses as much as I can (apart from weekends when I'm out). My vision definitely wanders around, probably not helped by staring at computer screens all the time.

I have heard that getting them cross-linked can make them more stable. But I haven't had either of mine done so can't say really.

andytraill wrote:I have the same effect, I try to wear glasses as much as I can (apart from weekends when I'm out). My vision definitely wanders around, probably not helped by staring at computer screens all the time.

I have heard that getting them cross-linked can make them more stable. But I haven't had either of mine done so can't say really.

Glasses are no good to me. Too much blurriness and ghosting for all day use. Optician can't resolve that, due to my varying acuity

CXL is no use to me now im 38. Progression isn't moving enough for the benefits. My last few cornea scans were going up and down :S

I used to have this issue when I used to wear glasses as well as contact lenses. I would say the cornea does change daily depending on factors such as environment and how long you wear your lenses (overusing them can cause problems such as oxygen deprivation).

What worked for me was picking at least 1 day of the week where I try to totally relax my eyes - no lenses or glasses. Also getting at least 8 hours of sleep every day and following a healthier lifestyle has made a difference too. Lubricating the eye is very important, especially in the morning and at night before you sleep (I use Celluvisc 1% and Lacrilube before I sleep and Celluvisc alone when I wake up.). I also have one of those Challenge humidifiers from Argos, and it does a great job of keeping the air nice and moist, which helps too.

Hope this helps

RGP lenses, even the best fitting will put pressure on the cornea just due to their natural weight so based on the fit will either flatten or squeeze the cornea as you wear them so the degree of change will depend on how long you wear them, not just day to day but week to week.

When I changed from RGP lenses which I had been using for 4 years, initialy no more than 8 hours per day and towards the end only an hour a day, it still took about 9 months for my corneas to demould from the RGP lenses. My right eye is flatter than before as the RGP lens was squeezing the cornea and my left eye is steeper as the RGP lens was pushing it flatter. If the fit of my RGP lenses were to be checked against what an ideal RGP lens fit would be, they were pretty good, so in medical terms they were correctly fitted. Counts for nothing when you can only wear them for an hour per day.

I think even soft lenses have an effect on the eyes because they aren't weightless, but there is also the effect of the brain having to suddenly adapt from full vision to no vision.