UK Keratoconus Self-Help and Support Association

Hi,

I m dinesh kumar, I had crosslinking (c3r) done in july 2008 - 5 years back.
feel my viosn is stable now. so thinking abt option for correction

waited for keraflex, but results dont seem to be permanent

if I go for INTACS
may not provide more than 3 Diopters correction

thinking abt PRk as best possible option or LASEK
my K readings r around 54 , so i assume need over 10 D of correction
cornea thickness is in range of 445 to 455

my doubts for PRK
is my cornea too thin ?
can need for too much of correction (10 D) increase risk in PRk?
and most important will I need to have crossslinking again?

will consult Dr. by end of this month & update my post

thanks Dinesh

I've met a number of people post CXL who either wear soft lenses for KC or have found that the 'normal' disposable soft lenses designed for high astigmatism that are readily available at most high street opticians have found they can get excellent stable vision.

Perhaps it is just another type of lens you need to try rather than the more drastic surgical options that you mention?

Hi Dinesh
I was wondering how the cross linking procedure has been for u? I'm 25 and have KC although at the moment I dnt wear my lens but my vision in the left eye is deteriorating I was thinking about cross linking.

Do u know if it's available on nhs ?

hi Kirsty,

if u have KC and its progressing then better consider crosslinking
every 6months have eye chekup, get pentacam topography reports

crosslinking halts further detoriation but will take atleat 6month to stabilse

i know my vison today is poor( some haze double vision) compared what it was in 2008 pre cxl
but without croslinking it could have been worse.

Kirsty87 wrote:Hi Dinesh
I was wondering how the cross linking procedure has been for u? I'm 25 and have KC although at the moment I dnt wear my lens but my vision in the left eye is deteriorating I was thinking about cross linking.

Do u know if it's available on nhs ?

hello kirsty87,

I was 25 when diagnosed with KC and underwent cross linking on one eye last November. This eye has very slightly improved since. Its best not to delay getting it done 'cause at least it stops it getting worse. My vision would be so much better if I had got the treatment done just a few months sooner -About to get my other eye done next month. unsure if its available on nhs as i'm in oz, however our equivalent does not cover the treatment.

Regards,
ames

Dinesh,

It really is not a good idea to be thinking about LASEK if you have KC even if you have been crosslinked. People who are not keratoconic can develop it after LASEK, particularly those requiring high minus correction.

You could look at lens implants?

Lynn

I would agree to Lynn.
But, if your cornea is thick enough you could try topography or pentacam guided PRK.
The best surgeons for it are Dr. Cummings in Dublin (I had the surgeries there) and Dr. Kanellopou8los
in Athens. But I would try it ONLY if you don´t get enough vision with lenses or if you can´t stand them.

Best regards

Andi

(no expert but from stuff I've looked at for myself)

One point to note on even PRK after CXL is that you remove the topmost (and most effectively CXLed) layers of the cornea. Having said that I know it can and has been done.

How correctable are you with specs? Would an intraocular contact maybe be a better option(recognising it's not "trivial" surgery)?