YouTube

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Andrew MacLean
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YouTube

Postby Andrew MacLean » Thu 07 Jun 2012 12:43 pm

I have launched a clip on my YouTube Channel in which I talk about my own experience of Keratoconus. The total clip length is just over 2 minutes and I do realise that I leave more unsaid than I actually say. Still it would be good to have some feedback from the real experts in KC (those of us who live with it personally or whose family live with it).

http://youtu.be/hE21mUvkLk0

I have put a link to the forum in the video notes.

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Re: YouTube

Postby Andrew MacLean » Thu 07 Jun 2012 1:36 pm

I'm sorry, I don't know what the problem was there; I can confirm that the video is now viewable at

http://youtu.be/hE21mUvkLk0

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Re: YouTube

Postby space_cadet » Fri 08 Jun 2012 12:28 pm

great to hear you speaking out Andrew x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Andrew MacLean
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Re: YouTube

Postby Andrew MacLean » Fri 08 Jun 2012 1:02 pm

Thanks Lea. I think I may add a more upbeat chapter 2.
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Re: YouTube

Postby space_cadet » Sat 09 Jun 2012 9:58 pm

says video is not available x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Andrew MacLean
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Keratoconus: Yes, I have KC
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Re: YouTube

Postby Andrew MacLean » Sun 10 Jun 2012 7:44 am

That was my fault, Lea. I put the wrong address on my previous (and now deleted) post.

Chapter 2 is at
http://youtu.be/iFlp-EFsOv4

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epik
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Re: YouTube

Postby epik » Mon 11 Jun 2012 2:12 pm

Hi Andrew,

emotion, optimism and BRAVO.

Bravo for Your 6056 posts, bravo for Your positive attitude in life.

All the best,

epik

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Re: YouTube

Postby krolen » Mon 11 Jun 2012 4:08 pm

well done Andrew good job -) krolen

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Re: YouTube

Postby Loopy-Lou » Mon 11 Jun 2012 4:49 pm

Andrew that was fab to see you! what a great idea, I reckon more members should do this, speak on specific issues too such as cornea donation so that people can grasp what it entails, and address myths. Also lenses and glasses and part-time partial sight syndrome!

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Re: YouTube

Postby Loopy-Lou » Mon 11 Jun 2012 4:59 pm

I think in addition to producing KC vids there should be KC Oscars/BAFTA's for them, we could have an award ceremony.

Suggestions for further vids [of the alternative non serious variety]:

A 101 uses for a scleral lens [frisby/drinking liquers]

I'd like to produce one on verbal lens abuse of RGP's as anxiety management

Wrestling and scleral insertion [Ken needs to produce that one].

Novel answers and cruel and unusual methods of violence for 'can't you wear glasses?' moments

How to clear the room when you've dropped a lens

Gurning for lens pain..


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