UK Keratoconus Self-Help and Support Association

Hi,

I work for NHS Blood and Transplant (NHSBT), and am currently working on a dissertation on the topic of corneal grafts. NHSBT is reviewing the corneal transplant strategy, and as part of that, I am hoping to be able to gather some feedback from people who are both waiting for a corneal graft, and those who have had a corneal graft. This feedback will be anonymised and then form the basis of my thesis, and it will also be shared with NHSBT staff and the National Advisory Group where discussions will take place on how patient experience can be improved and national discrepancies minimised.

I have spoken to Anne Klepacz who has suggested me posting on this forum, as she believes that some KC members might be willing to help. The feedback will be gathered by way of a short questionnaire.

If you would be interested in participating, please either reply to this thread, or PM me. I am in the process of developing the questionnaire, and would be hoping to issue it to any volunteers in a couple of weeks. All data generated will be completely anonymous.

Thank you in advance for your help,
Zoe

Hi Zoe - sound interesting - count me in! FYI I am post graft in one eye & going for graft in the other.
Jez

Hi Zoe

Sounds interesting. Count me in ( grafted last May)

Ian

I'd like to take part so you have some data from some of us that are over 20 years post graft!

Hi Zoe

I would like to help, I have not yet had a graft but I am about to go on the waiting list

Regards

Gary

Hi Zoe

I had a graft three weeks ago and would be happy to be involved.

Regards

Dave

Hi Zoe

I had a graft in my left eye 5 days ago so would be more than willing to help

Matt

Hi Zoe,

I had my graft in May 2010. It wasn't successful but if you wish me to still help in your survey I would be quite willing.
Regards Ginny Dobson

hi Zoe, if you are still looking for participants i would be happy to get involved. I have had a corneal graft in both eyes with a 10 year gap between them

had my graft in december '11 would be willing to help .