I am a bit of a lurker here but find the forum very helpful. However for the first time in 20+ years of being a KC sufferer I am depressed about my condition so thought I would post.
I have KC in both eyes since 16 and am now 43. I was given RGP lenses from the start and have worn them ever since. In 91 I needed a graft on the left eye which was done at my local hospital. After a year the hospital said that I needed another graft as they still couldn't fit a lens on the eye and my sight was non existent.
Luckily my Boots optometrist suggested I get a second opinion so I was referred by my GP to Moorfields. Moorfields were able to fit a RGP lens and I have had excellent sight with the lens in that eye to date. Around 5 years ago my right eye deteriorated and I could no longer wear RGP lens. Moorfields tried me with a scelrel lens but it didn't work for me - poor sight which just made the good left eye sight worse as I got loads of ghosting etc. Around this time I also started to suffer poor vision in the dark, I mean I can't see in the dark at all, its like looking at a black wall.
In March 2011 I underwent a graft on the right eye at Moorfields. It was a partial graft and the stitches were removed last September. I then went back in December and they tried a RGP lens on the eye. They had trouble even fitting a lens as the astigmatism was still very high. In the end they got one to fit but the vision is poor, not even half way down the chart.
Last night I had to drive 40 miles in the dark along A and B roads and it was just scary at times, with dimmed headlights I find it hard to see the road ahead and so get very nervy breaking all the time
I think the journey last night has not helped my mood today, together with the poor results of my right eye graft. Sorry if this post has gone on but I just need to say (type) it.
Regards,
Nigel
