New to KC and Forum
Posted: Sun 10 Apr 2011 4:25 pm
Hello!
I am 31 years old and i have been told that i have KC about 6 months ago. Since then my life has been a nightmare, i have constant headaches, pain in my eyes, don't see well with my glasses and driving (I think i shouldn't drive, my vision is 20/60 or 20/65 and i cant see anything clear is like everything is a blur) or just stepping outside the house is awful as i can't bare the bright light fro the sun, from the cars from anything at all.
I have been told that i will have to wear special contacts to improve my vision, i have already tried 4 different ones(special soft ones made just for KC patients) and my eyes don't accepted them at all, or they keep moving at all the time, or i just can't keep them in the eyes or i just can't open my eyes if i am wearing them....
I have tried RPG ones but is the most painful and awful thing to my eyes, last friday went to the hospital again and the doctor told me that i have to try and put the RPG has this is the only contact that will help my vision. In order for keep them on my eyes enough time to measure the fitting and see how they were sitting in the eye they have put some sort of drops that work as anasthesia, it stings but i didn't felt them for about 5 minutes, after that, awful....
I have to go back in 4 weeks time to try the contacts again but this time with my prescription on it, i am worried because i have been told that if i can't wear the contacts there is only 2 solutions, one is the cornea transplant or graft i think is the correct name(that i am afraid to do) and the other is inserts or intacs but this last one is not covered by the NHS so i cannot afford it.
I need some help to deal with all this but no one seems to be able to help me.
I drive only to take and pick up my husband from work as at this moment he is the only one working(if i could i would not drive as i think i am not that safe on the road), i do not get any benefits?JCA at all (just saying this before someone says or thinks "another one in benefits") and apart from the constant pain, the low vision and the fact that i am afraid of losing my vision the only thing i want is some advice/support in understand KC.
I wish i had more support from he NHS or even my GP, but to be honest my GP knows less than me about KC....
And just out of the blue having a vision (with glasses) of 20/60 is partially blind? Just asking because people keep tell me that i am partially blind and i do not know if it is true...
Sorry for any bad spelling or even missing words but i can't see very well the letters...
I am 31 years old and i have been told that i have KC about 6 months ago. Since then my life has been a nightmare, i have constant headaches, pain in my eyes, don't see well with my glasses and driving (I think i shouldn't drive, my vision is 20/60 or 20/65 and i cant see anything clear is like everything is a blur) or just stepping outside the house is awful as i can't bare the bright light fro the sun, from the cars from anything at all.
I have been told that i will have to wear special contacts to improve my vision, i have already tried 4 different ones(special soft ones made just for KC patients) and my eyes don't accepted them at all, or they keep moving at all the time, or i just can't keep them in the eyes or i just can't open my eyes if i am wearing them....
I have tried RPG ones but is the most painful and awful thing to my eyes, last friday went to the hospital again and the doctor told me that i have to try and put the RPG has this is the only contact that will help my vision. In order for keep them on my eyes enough time to measure the fitting and see how they were sitting in the eye they have put some sort of drops that work as anasthesia, it stings but i didn't felt them for about 5 minutes, after that, awful....
I have to go back in 4 weeks time to try the contacts again but this time with my prescription on it, i am worried because i have been told that if i can't wear the contacts there is only 2 solutions, one is the cornea transplant or graft i think is the correct name(that i am afraid to do) and the other is inserts or intacs but this last one is not covered by the NHS so i cannot afford it.
I need some help to deal with all this but no one seems to be able to help me.
I drive only to take and pick up my husband from work as at this moment he is the only one working(if i could i would not drive as i think i am not that safe on the road), i do not get any benefits?JCA at all (just saying this before someone says or thinks "another one in benefits") and apart from the constant pain, the low vision and the fact that i am afraid of losing my vision the only thing i want is some advice/support in understand KC.
I wish i had more support from he NHS or even my GP, but to be honest my GP knows less than me about KC....
And just out of the blue having a vision (with glasses) of 20/60 is partially blind? Just asking because people keep tell me that i am partially blind and i do not know if it is true...
Sorry for any bad spelling or even missing words but i can't see very well the letters...