Acute Corneal Hydrops x 3 - graft the next option ......
Posted: Fri 08 Apr 2011 10:13 pm
.... oh dear where to start and what to say. It's been so long and in some ways I feel guilty for having been away and not having looked as often as I once used to. However, the last few years have been rather tough and it now, once again all seems to have come to a turning point and not sure I have any options left anymore
I had got used to the idea of never driving, scleral lens wear was difficult and my life was limited in many ways however, I tried to make the most of it. And then it struck the hydrops in the left eye lasted several months and just when it was confirmed I could start to wear the scleral again the hydrops was back however, more severe (just my luck). Several months passed and I tried to get on as best I could with just the one lens and then one morning a work a little fuzzy patch, muck I thought best go and rinse the lens off/clean it. To no avail and the patch/mucky spot got bigger and bigger until an hour or so later in the nearest eye unit it was confirmed as hydrops and now I had no eyes working!
The day after I saw my own consultant and he again confirmed the hydrops. I then went almost 12 months with no lenses, went to work did my best was honest with them and now wonder was this my wisest choice?????
Anyway back to the consultant and the optom saw them both in Nov/Dec and it was decided I could wear the scleral lenses lenses again for a while. Graft still looking to be my best option and then the bombshell dropped ..... 30th Dec appt and I am advised that I have blood vessels that have grown in my right eye during the healing process of the hydrops, so graft is now not likely to be a viable option. In March I am told blood vessels can also be seen in the left .... just my luck Scleral lens wear is now problematic to say the least and vision is not great and limited.
My GP has jsut signed me off with depression and I am due to see the consultant on Thurs 14th when I plan to tell him, this is not life and what next?????
Am I being daft or what? Feel I have kept things together for so long and tried to be straong for everyone however, I seem now to be at the end of my patience. The graft, my last resort now seems maybe no longer an option so what happens next............
It's been a rubbish 10 years, I was diagnosed late, told it would not progress much - it galloped along like a national winner! Hydrops who gets that? well me and 3 times and a graft not many need these I was told during initial appointments and now blood vessells ... whats that all about.
Think I just needed a rant (sorry ) and maybe, just maybe someone will respond and remind me I am being daft and pull myself together!!!!
I had got used to the idea of never driving, scleral lens wear was difficult and my life was limited in many ways however, I tried to make the most of it. And then it struck the hydrops in the left eye lasted several months and just when it was confirmed I could start to wear the scleral again the hydrops was back however, more severe (just my luck). Several months passed and I tried to get on as best I could with just the one lens and then one morning a work a little fuzzy patch, muck I thought best go and rinse the lens off/clean it. To no avail and the patch/mucky spot got bigger and bigger until an hour or so later in the nearest eye unit it was confirmed as hydrops and now I had no eyes working!
The day after I saw my own consultant and he again confirmed the hydrops. I then went almost 12 months with no lenses, went to work did my best was honest with them and now wonder was this my wisest choice?????
Anyway back to the consultant and the optom saw them both in Nov/Dec and it was decided I could wear the scleral lenses lenses again for a while. Graft still looking to be my best option and then the bombshell dropped ..... 30th Dec appt and I am advised that I have blood vessels that have grown in my right eye during the healing process of the hydrops, so graft is now not likely to be a viable option. In March I am told blood vessels can also be seen in the left .... just my luck Scleral lens wear is now problematic to say the least and vision is not great and limited.
My GP has jsut signed me off with depression and I am due to see the consultant on Thurs 14th when I plan to tell him, this is not life and what next?????
Am I being daft or what? Feel I have kept things together for so long and tried to be straong for everyone however, I seem now to be at the end of my patience. The graft, my last resort now seems maybe no longer an option so what happens next............
It's been a rubbish 10 years, I was diagnosed late, told it would not progress much - it galloped along like a national winner! Hydrops who gets that? well me and 3 times and a graft not many need these I was told during initial appointments and now blood vessells ... whats that all about.
Think I just needed a rant (sorry ) and maybe, just maybe someone will respond and remind me I am being daft and pull myself together!!!!