UK Keratoconus Self-Help and Support Association

Hi all, I've been diagnosed with KC in both eyes for the last 22 years, I'm 40 now and have been wearing Rose-K hard lenses for most of that time.
At one time my vision was pretty excellent with the lenses but over the last 5 years or so, the vision in my right eye has gone downhill to the point that on a sight test, I can only get down to 3 or 4 lines wih the lens in and the vision is 'fuzzy'. The right eye fairs a little better but again 5 or 6 lines down the letters are 'fuzzy'.
I've been going to Solihull hospital (Christine Wright) to try adding more power, etc but no success.

What could be my next step now. Any suggestions greatly appreciated.

gurdevb

it is hard to know what might be next for you; it rather depends on why you are not getting improved vision with lenses. Perhaps you need to be trying a different lens type or lens material.

Perhaps you are coming to the time when you will be discussing surgical options to improve your sight. Maybe they will suggest a graft.

Whatever lies ahead, be assured that others have gone that way before; let us know what is suggested. before you go for a future consultation, make a note of all the questions you want to ask; 'why is my sight not as good as it used to be?'

If they say you have staining or even ulcers on your cornea, ask whether this can be improved by not wearing lenses for a bit.
If they say that your keratoconus has advanced to a stage where lenses will no longer provide a good management strategy, ask about the upsides and downsides of whatever therapy they suggest.

Make sure that all your questions have been answered to your satisfaction, and that you have understood the answers.

Every good wish

Andrew