UK Keratoconus Self-Help and Support Association

Hi all,

'Been some time since I last posted on here - back in the days where Tony used to run the site. Good to see some helpful discussion and that all-important input from healthcare professionals such as Lynn. This is much appreciated.

What I wondered was if anyone else has a problem with Proud Nebulae on the surface of their corneas which makes lens wear problematic.

I am currently wearing hydrogel (30 day disposable) and GPs piggyback not without problems though so am investigating if removal of the nebulae may help. According to some websites and doctors this is a simple operation that can improve comfort, is repeatable and could improve vision.

Anyone else had this procedure done?

And while on the subject of procedures - any successful INTACs patients out there?

Kind regards
Ian

Hi Ian, Nice to see you back again. Not sure whether you have tried them, but I believe that scleral lenses are worth a try if you have proud nebulae as sclerals do not touch the cornea and therefore do not irritate the nebulae. Might be worth a go.

Don't know anything about the removal of the nebulae, how successful this is and how quickly they might come back, but I am sure someone else does.

Take care. SUE

Good to hear from you Sue... yep back again, I was busy with house moves etc. so lost touch with the forum.

The last two years has probably been the worst I've had with KC - before that it was restricted to night-time driving worries but now it's all about discomfort. Very sore eyes at the moment and only wearing the right lens pair...

Tried Sclerals and didn't get on too well and this vision wasn't so good - got a good consultant and optom in Oxford so fingers crossed they will sort it - infact I have an appointment tomorrow.

A trip to Moorfields resulted in the consultant not recommending removal of the nebulae by laser unless it was seriously impacting my life - he suggested it could cause corneal thinning so questioned if it was worth the risk. Perhaps surgical removal is less intrusive?

Take care!
Ian