UK Keratoconus Self-Help and Support Association

Sorry people but am playing catch up on the posts i missed when i was away.

Does anyone know if Pauline went for her op after and how she's doing? Just hoping she is ok as i know she posted about surgery last time.

Pauline if you are around was just thinking of you.

Love Sweet X x X

Hello Sweet (& Pauline)

From previous posts I don't think Paulines' surgery is due till around the 22nd June.

Fingers crossed and best wishes to her.

Susan

Ok Susan thanks for that! Hoping you are both ok

Love Sweet X x X

Hello guys
Thanks for thinking about me. I have the op on 21 June all being well!
Obviously I am still scared about what is to come but I am feeling less doubtful about actually having it done now. I spoke to my optician about my doubts as to why I was having the graft at this time when I saw how other people on this forum appeared to be in a lot worse position than I was. He reassured me that my surgeon was not the type of person to put anyone forward for the graft unless he felt that it was necessary. In the past he has reffered patients back to the optician becasue he felt that they were not ready.
I haven't spoken to the surgeon himself about my doubts because I am just not comfortable doing it. I feel that it would look like I was questioning his decision and his integrity and i just don't want to do it.

Also I have talked to my husband about what my options are if I decided not to go ahead with the surgery at this time. If you think about it the optician has already said that he cannot get me a better fit on the lenses or better vision and so potentially in a relatively small space of time I am not going to be able to wear my lenses which for me means that i could not see well enough to work, read, watch tv do my household chores or basically anything!.
The fit on my lenses now is not very good at all. they are movng about a hell of a lot and one fo them keeps poppong out all the time.
By the time I get to this stage and then reapply for surgery and considering how many months all that will take I would probably wish that I hadn't cancelled it in the first place!
I will keep you posted as to how it all goes and thanks again for your support.

Hi Pauline, I know that you are just about to go for the op, however, have your tried scleral lenses yet? These are the ones that cover your whole eye and are much more comfortable than rgp corneals.

I had worn corneals for over 25 years when my eyes just decided that enough was enough and they would not tolerate them any more. Like you, I thought that I would have to have the op, but luckily I was offered scleral lenses and these have been just great. That was over 6 years ago now and I wear my sclerals for 12-16 hours every day. They do not give me quite as good vision as with the corneals because they don't actually touch the cornea, but this is corrected with glasses which I wear for driving/reading/pc work etc. The rest of the time I do not need the specs.

Sclerals are an option when people are having problems tolerating corneals or the cone maybe too big and the corneals keep falling out. Sclerals CANNOT fall out! (KCers often end up wearing them post-graft too). They are very comfortable and no dust/grit can get behind them - I often wish I had been offered them years' ago so at least I could have given my eyes a rest from the corneals, but hey, at least they have kept me off the operating table.

There is info on sclerals on the KC website but if you want to know anything else, please email me on sue.ingram@ntlworld.com

Whatever you decide must be the right decision for you as KC is unique to each individual, but I just thought sclerals were worth mentioning as you seemed in two minds. Hope everything goes well and keep us posted. SUE

Best of luck Pauline.3 weeks,post op I`m still happy with my decision.I hope you will be too.The anticipation is so much worse than the reality.

Best Regards Pete

Just wanted to drop by and say good luck! I guess as we haven't heard from you that you went for the op on the 21st. Just really hoping that all goes well. Stay positive, thinking of you!

Sweet X x X