UK Keratoconus Self-Help and Support Association

Hi all,

Just introducing myself.

Not long been diagnosed with a keratoconus in my right eye. I'm only 22 so it's not too serious yet although without contacts it is pretty blurred! I just got my contacts on Saturday, RGPs, so hopefully they should improve things - having a pretty miserable time getting them to stay in. May have to go back this Saturday for advice. Pretty sure I'm doing it wrong - they always go in off-center, and seem to pop out on recentering.

Anyway I'm a Computing student from Kent. Nice to meet you all.

Steve

Hi Steve and welcome to the forum!
It takes most of us a few weeks to get used to contact lenses, building the wearing time up gradually. But keratoconic eyes aren't easy to fit, and optometrists don't always get it right first time. So if they do continue popping out, do go back and get the fit checked out (and your technique for getting them in and out). I'm sure you'll get there in the end - the fact that you can see so much better when they're in is always a big motivator!
And if you'd like to join our postal mailing list for newsletters, the KC information booklet and DVDs of our conferences, just drop me an e-mail at anne@keratoconus-group.org.uk
Best of luck,
Anne

Welcome Steve. As Ann says it's worth getting the fit checked . Even with a good fit they may go off centre or pop out if you are unlucky. After a period of time you get to know what you can get away with. I now turn my head to look at something off to the side rather than moving just my eye balls.

Best of luck

Ian

Hi Steve

I can remember when I first had contact lenses over 25 years ago - was a complete nightmare - but I ave to say things ave moved on sooo much now and the optometrists are brilliant.

All I can say is preserve - they do take a while to get used to but in the long run it will be worth while.

Wishing you well

Libby

Hi Steve

Getting the right fit with a lens can be a bit tricky. I had to change my lens after cross linking, I am now waiting on the 3rd lens. Hopefully 3 the charm and it fits ok
You will get use to putting them in quickly enough. To stop my lens going in off center, Once the the lens is just close to my eye i look directly at it rather than look at what i'm doing in the mirror.
Hope this helps you.

Rgds
Denis

Alrite mate, im 24, first diagnosed around 19ish at the end of my first year of Uni so similar situation (though i had RGPs for both eyes)

I'll never forget putting them in for the first time and staring in wonder at how gross my student houses carpet was!

They are tricky to start, i found i had to get my eyes at a certain angle for them to feel comfortable and stay for the first week or so of slow buildup wear, used to play pro evo slouched in a beanbag at just the right angle so i could see comfortably! Had two years with no problems at uni which was nice, not so good thesedays but thats for another time, good luck with it!

Steve! dont fear it does get easier, to be fair I think I was lucky I was diagnosed at 12-13 so my consultant put mine in and I literally just had to sit there in the chair for 30mins or so then he would take them out again for me, then I built up and did it myself- its just a trial and error type of thing. Though you could need to be refitted, if they pop-out. Im now 21, and can say sometimes I still have problems putting mine in and taking them out, but just keep trying. good luck with your university!

Clare