Re: New Sight Registration possibility for KC: Input needed
Posted: Tue 08 Jun 2010 10:37 am
At last someone seeking to redefine the grey areas. Recognition and protection would help on those odd occasions when you feel ripped off, guilty or stupid etc.
Hi, just a few basic experiences and suggestions for the day to day problems with KC. For some the problems a consistantly inconsistant!!!
BAD DAYS - GOOD DAYS - On the bad days you can look and feel stupid and incompitant, then on the good days you can look like a fake and feel guilty because "yesterday you were half blind, but today you can see perfectly - how strange!"
ALLERGIES- seasonal / environmental - can cause sorness, resulting in reduced or no wearing time or an increase in mucas, resulting in blured vision
INSURANCE - Once KC or a graft is declared, any claim concerning vision can be excluded by the policy. When you need time off this can mean the difference bewteen financial sink or swim.
BUS PASS - If your having a bad day/week/month, and these can be frequent, the right to a bus pass could help some.
1. The legal "grey area" when a person has standard vision whilst wearing lenses BUT is at best partially sighted or at worst technically blind when unable to wear due to sorness/infection or loss of lens. This person appears to be treated wholly as normal at all times in the eyes of the law, even the DDA seems open to interpratation on this. This type of situation seems unbeleivable to most.
2. Health insurance cover & sick pay - serious critical illness, sickness cover.
This is not a problem if you have private cover taken out before diagnosis.
A student who is diagnosed between the ages of 16-21 may not start work until 21, is disadvantaged when obtaining cover due to the onset and diagnosis usually in their teens when they are unlikly to obtain or need this type of cover.
Also anyone changing job/employer who was diagnosed during their last employment term will be penalised as this is now viewed as a pre-existing condition by the new employer and will not be covered if using an employers sick pay scheme.
Statutary Sick Pay is only offered for 26 weeks @ £60ish.
3. Solutions and prescription charges - When you are reliant on the use of leness you are also reliant on the need for solutions, offer at least one full months of solution (wetting, saline, cleaning) for one charge.
I DO NOT like the idea of wearing a badge.
All for now.
Hi, just a few basic experiences and suggestions for the day to day problems with KC. For some the problems a consistantly inconsistant!!!
BAD DAYS - GOOD DAYS - On the bad days you can look and feel stupid and incompitant, then on the good days you can look like a fake and feel guilty because "yesterday you were half blind, but today you can see perfectly - how strange!"
ALLERGIES- seasonal / environmental - can cause sorness, resulting in reduced or no wearing time or an increase in mucas, resulting in blured vision
INSURANCE - Once KC or a graft is declared, any claim concerning vision can be excluded by the policy. When you need time off this can mean the difference bewteen financial sink or swim.
BUS PASS - If your having a bad day/week/month, and these can be frequent, the right to a bus pass could help some.
1. The legal "grey area" when a person has standard vision whilst wearing lenses BUT is at best partially sighted or at worst technically blind when unable to wear due to sorness/infection or loss of lens. This person appears to be treated wholly as normal at all times in the eyes of the law, even the DDA seems open to interpratation on this. This type of situation seems unbeleivable to most.
2. Health insurance cover & sick pay - serious critical illness, sickness cover.
This is not a problem if you have private cover taken out before diagnosis.
A student who is diagnosed between the ages of 16-21 may not start work until 21, is disadvantaged when obtaining cover due to the onset and diagnosis usually in their teens when they are unlikly to obtain or need this type of cover.
Also anyone changing job/employer who was diagnosed during their last employment term will be penalised as this is now viewed as a pre-existing condition by the new employer and will not be covered if using an employers sick pay scheme.
Statutary Sick Pay is only offered for 26 weeks @ £60ish.
3. Solutions and prescription charges - When you are reliant on the use of leness you are also reliant on the need for solutions, offer at least one full months of solution (wetting, saline, cleaning) for one charge.
I DO NOT like the idea of wearing a badge.
All for now.