UK Keratoconus Self-Help and Support Association

Hi everyone

Just been on the web and saw a site selling "pin hole" glasses.

Just wondered - would these be any good for us? I do ave a pair of glasses which i wear late at night - the vision is betta than without glasses but makes everything look further away - so its difficult to walk around in them and impossible to walk up or down stairs.

wondered if it would be worthwhile investing in a pair of pin holes glasses

kind regards
Libby

Some people with very severe KC use pinhole glasses to watch television. So far as I am awarethey are not useful for any other purpose, and are probably only an advantage if your KC is very bad indeed.

Andrew

hi libby , ive gota pair of these and there handy when your not wearing your lenses to watch tv or read a book..

Hi Libby,

I know exactly what you mean. You can watch TV – but walk across the room the whole world swims and caves in at the edges. I had exactly the same problem! However if you persevere the brain will make sense of it.

In 1997 (having not worn glasses for 20 years) I ordered a pair of back-up glasses. I didn’t expect them to replace my lenses but I had hoped that they would provide some emergency vision for a rare bad eye day. When I first got them I was warned that the prescription had been backed off as my eyes weren’t used to seeing through glasses however I found the distorted images difficult to cope with and the glasses were consigned to the back of a drawer.

A few years later I decided to have another go and started to wear them for a short time each morning. Gradually the verticals became vertical and the horizontals horizontal. Although the vision is nothing like that with my contact lenses it is a lot better than without any aid. I now wear them for half an hour or so in the morning to give my eyes a rest.

Try wearing your glasses while you move around the house (but don't try to use them on the stairs) so that your brain can make sense of the images.

Lia

Thanks for yr replies guys

Think I may invest in a pair of pin hole glasses - got nothing to lose after all.

My ordinary glasses changed my life - having relied on contact lenses for over 20 years as I had been told I would get no benefit from glasses - a few years ago I insisted on having a pair of spectacles prescribed.
They had to tweek with the prescription as I couldnt cope with the vision (its made me feel extremely sick and headachy), even so the vision I got was wonderful.
After having years of literally no vision if I took my lenses out to now being able to watch the television and read a book as completely changed the quality of my life. Before glasses when I took my lenses out I would go to bed because watching television or reading a book was impossible.

So there we have it I will order a pair of the internet tonight and see how I cope with them.

Thanks again for yr replies

Libby x