UK Keratoconus Self-Help and Support Association

hi all,ive just joined this site and have read many different ppls views and experiences with KC..i my self was diagnosed when i was 16 (now24) i wore specs until the age of 20 until the KC progressed ,ive now been wearing rgp's for just over four years now with many ups and downs ..the main down being that ive had to quit my career as a vehicle tech due to the dusty atmosphere despite wearing safety goggles i found that the slightest grain of dust or dirt would really irritate making my lens's immposible to wear....i have heard that alot of you have mentioned scleral lens's and of there comfort benifits ,up until now i had not heard of these lens's even though i asked my nhs optician if there was any other alternative to rgp's which can be uncomfortable at the best of times..i hope that you all can guide me into finding more info on scleral lens's and share any benifits / comparisons to rgp's.(even as i write this ive just had to remove my lens wash it and re-fit it!!it always feels like an irritating grity sensation....)

Hi Matthew

Welcome to the board.....and its def a place to share your experiences and find out more info!

You are correct in the sclerals being a more effective solution when comparing it to comfortability...however there is also a potential downside as the visual acuity gained may be slightly worse then say a RoseK or another smaller RGP.

WHen I read you post relating to quiting the job, I did think that if you were aware of the scleral MAYBE that may not have been the case.

Ken Pullum at Moorefields and also of http://www.sclerals.com is the main man in the UK that is somewhat of a genius in fitting these. You may need to get a referal or send him a message off the site if you were to see him off hte NHS. But that would be a potential next step for you.

OR, find out whether you have any opticians who have had experience in fitting Sclerals as I am sure Ken has taught man a optician in fitting these lenses..

WIth regards to there benefits..there are super...in that there very comfortable, easy to put in and take out (after the break in stage) allows you to open you eyes wide and not look like a "squint", has very little chances of dirt/dust getting into them.

Downside maybe the visual acuity, cost (if private) insertion and avoiding bubbles. etc

Hope that helps mate

J

cheerz mate i shall look into scleral lens's.i hope they do the trick.

excellent...let us know how you get on...and how you go about getting them