Options Available and what should i do

[Squinter]

HI All,

Obviously it been a couple of months since my last post - But i have an update that i thought would be useful to share.

I've been waiting for a Hospital appointment which actually took place this morning, After a number of test, I had been previously mis-diagnosed and i actually have - Pellucid marginal degeneration - Which apparently is very commonly diagnosed as Keratoconus.

The only reason my hospital picked up on this is they now have a new machine

If anyone has any info i would appreciate it.

many Thanks

Brad

[Anne Klepacz]

Hi again Brad,
I'm pretty sure we have some members who have PMD. It's a variety of keratoconus where the cornea thins on the periphery rather than in the middle. It might explain why fitting contact lenses which actually improved the vision proved so difficult. As far as I know (and I'm sure some of the optoms here will be able to tell you more) the bigger contact lenses such as semi sclerals or sclerals are more successful at correcting the vision in PMD. Did the specialist say what they plan to do next? I hope you can get something sorted now that it's clearer what the problem is.
All the best
Anne

[Squinter]

Yes it seems i was lucky, Whilst i was being diagnosed by the specilaist, there was also an optometrist there -

Maybe things are tough for optometrists currently and they are starting to ambulance chasing

I'm now booked in for a Triple session on Saturday 6th march - to hopefully start the process

Really i could do with some advise on what questions i should be asking the optician in order to get things sorted as quickly ans smoothly as possible ?

[DJ Smak]

Hi squinter, I to have PMD. I've been lucky, I guess if you can call it that to have been able to get by with glasses the past few years, although I think that may come to an end soon as my corneas are changing yet again. I just got new glasses in December. . Although they don't help my right eye much, the left eye has been ok in glasses til now. How have you been since your being diagnosed? I myself am contemplating trying lenses again, maybe the synergeyes hybrids if they can be fitted for my pmd. If not I don't know what I will do as I cannot afford what my doctor wanted me to get, which was implantable lenses and cross linking. He even suggested intacs but again I cannot afford any of that and I can't get coverage. I hope things are working out for you.