I cant cope here, after a week of being almost blind im losing patience with everything. I cant do this. It is hard work getting dressed in the morning, i cant see to do anything.
I struggle around the supermarket as havent long moved so i dont know it well, but i cant see what the hell i am buying. I almost got knocked down by a car the day vefore yesterday as i just didnt see it and so stepped right out in front of it. It was silver as i learnt when he stopped, not a good colour to see.
Just tired, fed up and bored out of my mind. What do blind people do all day??? As i am so bored i cant live like this much longer qqqqrrrgggghhhh Cant see to cook, watch tv, read mail, nothing
Work arent going to be happy with me if i am off again next week, due to go back monday but this isnt any better at all. Now getting pain in my left eye which i never get, but thinking maybe it is trying hard to compensate for the fact that it is now better than my right. But as i can only see a light box in my left eye normally enough said i think.
Sorry if i made mistakes here, just cant see. Is this just going to heal soon? Will i wake up one day in the land of seeing?? Just losing hope here have so much to do and just sitting around the house blind is driving me insane.
Sorry to moan
Claire X x X
Am going insane!
Moderators: Anne Klepacz, John Smith, Sweet
Hi Claire,
You know its hard to say much after your post as I wish i knew more on the subject, not experiancing it myself...I can only imagine how hard it must be for you right now...
Personally what i would do...is get my eyes checked again just to feel more confident about things...and with that get some more face to face trained advice....
Another thing...and I know this may not be much...but it may get rid of some of the boredom...try listerning to topical shows on the radio in the meantime...
Hope to hear some good news soon...
You know its hard to say much after your post as I wish i knew more on the subject, not experiancing it myself...I can only imagine how hard it must be for you right now...
Personally what i would do...is get my eyes checked again just to feel more confident about things...and with that get some more face to face trained advice....
Another thing...and I know this may not be much...but it may get rid of some of the boredom...try listerning to topical shows on the radio in the meantime...
Hope to hear some good news soon...
-
Drew Radcliffe
- Regular contributor
- Posts: 142
- Joined: Tue 30 Mar 2004 9:02 pm
- Keratoconus: Yes, I have KC
- Location: Cardiff
Hi Claire
Wish I had a penny for each day I felt like you do today. I find it really scarey, frustrating and I really could do with the world being emptied of people. (You don't want to know what I said to the woman who scream 'are you F@"$ing blind' at me when I hit her in the back of her legs with my cane) Or to the old bat in Wooll'ys that always shouts incase im deaf as well.
Supermarkets are horrific their badly laid out all the same corporate colours and way way too busy full of busy people, and what the hell do you do when you need a tin of Heinz soup, its like wining the lottery if you get it right. If your really struggeling ring them before you go and they'll sort someone out to help you round. Or Ive taken to ordering my food over the net.
As far as crossing the road goes I close my eyes wait till im happy I can't hear anything then look to double check before launching myself off the pavement. Its not failsafe but its better than vision alone. Or if its too busy to listen and you can use a pelican crossing but can't see the green man. Put your hand under the yellow box and youll find a small black peg that spins when the green man is on. And if your really lucky youll get a lump of chewing gum as a bonus for being so safety concious.
I really hope you get up and running again soon.
Drew
x
P.S will you join me in a campaign to make all cars red and peddle powered - Just like Noddy's
Wish I had a penny for each day I felt like you do today. I find it really scarey, frustrating and I really could do with the world being emptied of people. (You don't want to know what I said to the woman who scream 'are you F@"$ing blind' at me when I hit her in the back of her legs with my cane) Or to the old bat in Wooll'ys that always shouts incase im deaf as well.
Supermarkets are horrific their badly laid out all the same corporate colours and way way too busy full of busy people, and what the hell do you do when you need a tin of Heinz soup, its like wining the lottery if you get it right. If your really struggeling ring them before you go and they'll sort someone out to help you round. Or Ive taken to ordering my food over the net.
As far as crossing the road goes I close my eyes wait till im happy I can't hear anything then look to double check before launching myself off the pavement. Its not failsafe but its better than vision alone. Or if its too busy to listen and you can use a pelican crossing but can't see the green man. Put your hand under the yellow box and youll find a small black peg that spins when the green man is on. And if your really lucky youll get a lump of chewing gum as a bonus for being so safety concious.
I really hope you get up and running again soon.
Drew
x
P.S will you join me in a campaign to make all cars red and peddle powered - Just like Noddy's
Hi Sweet, just a message of support... hang in there.. i know it;s easy said, when not having experienced anything like it.l.. but i do look after my uncle who is blind!
Radio is a fantastic medium... he loves it... Calm soothing music,..
I guess just hang in there... and feel free to moan as much as you want here! i'm sure people will be glad to hear ya moan rather than go through it alone!
Laters!
Radio is a fantastic medium... he loves it... Calm soothing music,..
I guess just hang in there... and feel free to moan as much as you want here! i'm sure people will be glad to hear ya moan rather than go through it alone!
Laters!
"Snowflakes are one of Nature's most fragile things, but just look at what they can do when they stick together!"
"Tell me and i'll forget, show me, and i may not remember, involve me, and i'll understand!"
"Tell me and i'll forget, show me, and i may not remember, involve me, and i'll understand!"
Moan away girl.....thats all part of the service on here I guess!
I have had days like yours too, to the point were the Dr was going to shove me on happy pills but I knew that could never be a long-term soultion so decided against it!
Just think on as I try to do...someone is always worse off...somewhere anyway!
Dave.
I have had days like yours too, to the point were the Dr was going to shove me on happy pills but I knew that could never be a long-term soultion so decided against it!
Just think on as I try to do...someone is always worse off...somewhere anyway!
Dave.
The only thing permanent in life is change!
-
Lynn White
- Optometrist
- Posts: 1398
- Joined: Sat 12 Mar 2005 8:00 pm
- Location: Leighton Buzzard
Claire....
Have you got a follow up checkup with Moorfields? You sound like you really need someone to look and see whats happening.
Have you tried the good old pinhole specs to see if that helps?
Have you tried to put the lens in for a couple of minutes to check how foggy your vision is? If you are worried about doing this - check with Moorfields again to see if they would OK it... sometimes just the reassurance that things are changing helps.. and if it not... then you need to go back and get it checked out again more thoroughly so you can give work an estimation of how long you are going to be off.
You are frustrated and bored because you are not used to not seeing. People who have come to terms with being blind put their minds to finding ways round things... you don;t do it because you are impatiently waiting to see again. There are lots of tricks to coping without vision but partly, psychologically, you don;t want to do that because you are determined to see. Therefore you are like a bear with a sore head...
If there IS not much improvement - you might ask Moorfields about bandage lenses... sometimes if you put in a bandage lens(ie a special soft lens) with hypertonic salt solution, it helps to reduce the swelling and oedema.
Good luck and all my sympathies.... !!!
Lynn
Have you got a follow up checkup with Moorfields? You sound like you really need someone to look and see whats happening.
Have you tried the good old pinhole specs to see if that helps?
Have you tried to put the lens in for a couple of minutes to check how foggy your vision is? If you are worried about doing this - check with Moorfields again to see if they would OK it... sometimes just the reassurance that things are changing helps.. and if it not... then you need to go back and get it checked out again more thoroughly so you can give work an estimation of how long you are going to be off.
You are frustrated and bored because you are not used to not seeing. People who have come to terms with being blind put their minds to finding ways round things... you don;t do it because you are impatiently waiting to see again. There are lots of tricks to coping without vision but partly, psychologically, you don;t want to do that because you are determined to see. Therefore you are like a bear with a sore head...
If there IS not much improvement - you might ask Moorfields about bandage lenses... sometimes if you put in a bandage lens(ie a special soft lens) with hypertonic salt solution, it helps to reduce the swelling and oedema.
Good luck and all my sympathies.... !!!
Lynn
-
Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
I put my lens in this morning but it is no different, still so dam blurry. Moorfields have discharged me, but am going to go back friday as it would have been a week on eyedrops and i think it should be better. Will let you know what happens.
Thanks for all of your support, and no i dont have any pinhole specs, to be honest now is not a good time to be trying to find things!! So no i havent looked for any.
And Drew, yes all cars should be red as that is the only dam colour i can see!!!!!!!! LOL!
Thanks Claire \X x X
Thanks for all of your support, and no i dont have any pinhole specs, to be honest now is not a good time to be trying to find things!! So no i havent looked for any.
And Drew, yes all cars should be red as that is the only dam colour i can see!!!!!!!! LOL!
Thanks Claire \X x X
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GarethB
- Ambassador
- Posts: 4916
- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
Hang on in tere Clair,
I know what you might be going through, I had to have three months off work, just to find out my KC had advanced but due to the optom not being able to do a diagnoses (I know he new what was wrong and why he could not tell me) and my GP had never heard of KC, so I had to sit at home not being able to see until I was seen by the specialist and then got fitted for lenses!
It took me about three weeks to get used to understanding the blur that I was seeing! The kitchen became amazingly tidy so I could cook and stuff without bashing in to things! Being a hardend motorist I had to learn where the bust stops are in the villag I live in and no end of times got off at the wrong stop as the bus driver would not tell when I was at the stop I needed. Perhaps if I had the stick he would of helped. Did not have a supermarket problem as there are no busses to supermarkets from where I live, but the few times my wife took me, I took advantage of the sr=ervice Tesco's still have but do not advertise. I made my way to customer services, explained my problem adnd I had someone go tround and do the shopping with me, they even opend a checkout to make it easire for me when it came to paying!
Do not be afraid to ask for help, the world is not as bad as we think. I know what a blured person looks like, but can not tell their age! Had one instance of an old lady helping me across the road in town
The local library helped with talking books so I could catch up on reading. Having the back end of the summer away from work, I took the oppertunity to redesign my garden. Could not tell what was plant or weed, so just dug it all up so it was brown and started with a bright hosepipe to mark the garden so I knew where to put plants. My garden is now has an element of randomness which I quite like now it is growing and I can see it.
Ignore what you can not do at present and concentrate on what you can do and build on it. I bet that is waht you tell some of the people that are in your care at work?
Hope this helps, but feel free to let rip and release any frustrations you have here.
Gareth
I know what you might be going through, I had to have three months off work, just to find out my KC had advanced but due to the optom not being able to do a diagnoses (I know he new what was wrong and why he could not tell me) and my GP had never heard of KC, so I had to sit at home not being able to see until I was seen by the specialist and then got fitted for lenses!
It took me about three weeks to get used to understanding the blur that I was seeing! The kitchen became amazingly tidy so I could cook and stuff without bashing in to things! Being a hardend motorist I had to learn where the bust stops are in the villag I live in and no end of times got off at the wrong stop as the bus driver would not tell when I was at the stop I needed. Perhaps if I had the stick he would of helped. Did not have a supermarket problem as there are no busses to supermarkets from where I live, but the few times my wife took me, I took advantage of the sr=ervice Tesco's still have but do not advertise. I made my way to customer services, explained my problem adnd I had someone go tround and do the shopping with me, they even opend a checkout to make it easire for me when it came to paying!
Do not be afraid to ask for help, the world is not as bad as we think. I know what a blured person looks like, but can not tell their age! Had one instance of an old lady helping me across the road in town
The local library helped with talking books so I could catch up on reading. Having the back end of the summer away from work, I took the oppertunity to redesign my garden. Could not tell what was plant or weed, so just dug it all up so it was brown and started with a bright hosepipe to mark the garden so I knew where to put plants. My garden is now has an element of randomness which I quite like now it is growing and I can see it.
Ignore what you can not do at present and concentrate on what you can do and build on it. I bet that is waht you tell some of the people that are in your care at work?
Hope this helps, but feel free to let rip and release any frustrations you have here.
Gareth
-
John Smith
- Moderator
- Posts: 1941
- Joined: Thu 08 Jan 2004 12:48 am
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Sidcup, Kent
Hi Claire,
Well done for hanging in there, but there's possibly a few weeks wait before you're back to normal!
In the meantime, after my op, a friend went to the library and got me out a number of "audio books" - they're a good way to pass the time without thinking that you're going brain-dead.
Radio dramas are good too - I invested in a number of those on CD. Some of them are even better than watching the film, as the special effects are so much better!
As for the shopping, I know Sainsbury's will also send someone round the shop with you to help you out absolutely free, but I prefer to do my shopping online - they're free delivery if you spend enough and want it during the week - and now I'm mobile again, I've stayed online shopping!!
Hang on in there...
Well done for hanging in there, but there's possibly a few weeks wait before you're back to normal!
In the meantime, after my op, a friend went to the library and got me out a number of "audio books" - they're a good way to pass the time without thinking that you're going brain-dead.
Radio dramas are good too - I invested in a number of those on CD. Some of them are even better than watching the film, as the special effects are so much better!
As for the shopping, I know Sainsbury's will also send someone round the shop with you to help you out absolutely free, but I prefer to do my shopping online - they're free delivery if you spend enough and want it during the week - and now I'm mobile again, I've stayed online shopping!!
Hang on in there...
John
-
Lynn White
- Optometrist
- Posts: 1398
- Joined: Sat 12 Mar 2005 8:00 pm
- Location: Leighton Buzzard
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