Cross Linking

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

waltdek
Newbie
Newbie
Posts: 5
Joined: Sun 03 Feb 2008 2:48 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Cross Linking

Postby waltdek » Thu 16 Apr 2009 3:35 pm

Street Spirit

Have you read Laura Hooks post in the teanagers section . It may solve your dilema

waltdek

street_spirit
Contributor
Contributor
Posts: 18
Joined: Tue 14 Apr 2009 7:43 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Cross Linking

Postby street_spirit » Thu 16 Apr 2009 3:49 pm

ah ha, thanks for that yeah I don't know perhaps I am listening to the negatives more then the positives. This Dr Nabib I think knows what he is talking about, my GP told me he is the best eye guy in the region by far! Still keep thinking what if it goes wrong, and the newly found out pain aspect of it doesn't sound so good...
Cross Link section of my Blog: http://mellowfellow.co.uk/category/kerratoconus/

waltdek
Newbie
Newbie
Posts: 5
Joined: Sun 03 Feb 2008 2:48 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Cross Linking

Postby waltdek » Sun 19 Apr 2009 11:25 am

Street Spirit

Have you made your decision .

Are you keeping up with recent posts on the site .

Good luck

waltdek

street_spirit
Contributor
Contributor
Posts: 18
Joined: Tue 14 Apr 2009 7:43 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Cross Linking

Postby street_spirit » Mon 20 Apr 2009 8:13 am

Hi Waltdek,

yes tomorrow (Tuesday) is the big day! Little nervous but I think I have come to the conclusion that the possible benefits out weigh the risks, and waiting to see would be more risky then being proactive about it, still that niggling feeling in the back of my head but that's probably natural!
Cross Link section of my Blog: http://mellowfellow.co.uk/category/kerratoconus/

street_spirit
Contributor
Contributor
Posts: 18
Joined: Tue 14 Apr 2009 7:43 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Cross Linking

Postby street_spirit » Tue 21 Apr 2009 8:43 am

Hi Guys,

If peoples are interested I plan to plot my progress with the treatment under a section of my blog which can be found here http://mellowfellow.co.uk/blog/?cat=170 I hope this will help anyone considering the treatment or am just interested in knowing more about the recovery process, having it done today, wish me luck!!
Cross Link section of my Blog: http://mellowfellow.co.uk/category/kerratoconus/

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Andrew MacLean
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Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Cross Linking

Postby Andrew MacLean » Tue 21 Apr 2009 11:15 am

street spirit

Great blog. Sorry, we seem to have been looking away when you arrived :oops: , welcome to the forum.

You are in our thoughts today.

Andrew
Andrew MacLean

Tiadinky
Newbie
Newbie
Posts: 6
Joined: Tue 21 Apr 2009 11:51 am
Keratoconus: No, I don't suffer from KC
Vision: Contact lenses

Re: Cross Linking

Postby Tiadinky » Tue 21 Apr 2009 11:56 am

My husband is having is cross linking done this Thursday and we are both as nervous as each other :shock: . The main thing is he wants to know when he can drive again as this is his job.

We have found it on the NHS in East Grinsted which has been a help.

Hope yours has gone well today and will let you know how his goes!

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Cross Linking

Postby Andrew MacLean » Tue 21 Apr 2009 12:00 pm

Tiadinky

Welcome to the forum

Tell your husband we all hope things go well on Thursday: would you keep us informed?

It is really good that C3R is becoming available to more and more people on the NHS.

Andrew
Andrew MacLean

lars
Contributor
Contributor
Posts: 46
Joined: Thu 15 May 2008 2:33 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Cross Linking

Postby lars » Tue 21 Apr 2009 7:17 pm

I wish you both good luck.
There is no observable pain during the procedure.
Tiadinky, it might need up to a month for the eyes to start settling, so it depends on the pre-op vision and individual healing.

Lars

street_spirit
Contributor
Contributor
Posts: 18
Joined: Tue 14 Apr 2009 7:43 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Cross Linking

Postby street_spirit » Wed 22 Apr 2009 1:48 pm

Well had it done yesterday! The doc checked my eye today said it was ok. Got a awful lot of drugs to take but I think I have a system now. Written a bit more on my blog about it but probably won't have much more to say for a week or two after the possibility of an infection and when I know if its helped the eye or not!

If anyone has any questions about what it's like then I am more then happy to answer.
Cross Link section of my Blog: http://mellowfellow.co.uk/category/kerratoconus/


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