UK Keratoconus Self-Help and Support Association

Hi,

I'm new to this site, and have to say I was surprised and very impressed to see that there is a site for KC sufferers, and how good it is!

I have recently slightly damaged my cornea, and had an infection. This is being treated with antibiotics and steroids (for a week now) and i am undergoing another week of treatment, then a week or two before I can put my lens back in.

I am sure everyone will understand how reliant one becomes on contacts, and I am finding it fairly difficult managing with one good eye for a month while I wait - does anyone have any ideas of anything I can do? The reason for the wait is the risk of re - infection - is that very great?

Thanks in advance for any help.

Tom

Tom...

thats a hard one to sort - especially if we don;t know how bad you KC is - whether you can manage in glasses etc...

I hate to say it but often the only way forward is to grin and bear it.

If you are on antibiotics AND steroids, then you have some inflammation as well as an infection and it is truly better to keep out of the lenses....

I do know how tempting it can be to wear them though!!

Lynn

I know that what Lynn said is the best advice anyone could give for you right now...but me...I would additionally invest in a pair of pin hole specs...just to get by and solider on...if anything around the house...while I'm waiting for father time to do his work!

ahh yes!! Sajeev...thanks I had forgotton those!

Hmmm... now maybe we need to get someone to make some really trendy pinhole specs and start a new fashion trend!

Lynn

here is one supplier....I bought mine from them a few months ago and seem ok....

http://www.eyetrainers.co.uk/

Im sure theres a few others, but the closest I got to designer were from here lol

PS - I have no vested interest in the above company. (Just incase!!!)

Funny you guys mentioned about trendy pin hole specs....I found a site once which where really trendy

I must find that site again!

The ones on this site was so trendy that no one could tell that they were pin hole specs....because they had a fake lens in front of the pin holes...they just looked like a normal pair of sun-glasses!!

Now all we need is more sunny days....lol....i'm sorry I can't help with that one

But you could go round like if your a superstar...I suppose!

Jayuk....

I do have to say the information on that link is very ...ummmmm.... misleading!!

Let me say that most sites promoting pinhole specs also imply these are all you need to "improve" your sight. Not true I am afraid and I do feel I need to point this out!

Otherwise the specs work great for seeing without contacts or glasses... the reason being optically, if a narrow beam of light is entering the eye along the visual axis, there is no blurring becasue you are blocking out the rest of the image that IS blurred.

Lynn

I didn't get too good a correction with just pinhole specs but managed to find a site that sold just the 'lenses' without frames. After a bit of a blue peter session I fiited them into a pair of clip-over sunglass frames and wore them over my glasses at work when I last broke a contact lens - this gives a much better correction than either pinholes or glasses on their own.

Can't remember the site but I found it as link on a site giving information on cataracts and pinhole specs.

I think you should patient that paula...its a good idea...there should designs just for KC!...I mean there is a need for them!

All the best

about pinhole specs..just read a post below saying that they are bad, is that the case for everyone with visual problems,or are they ok for KC sufferers?

sorry to keep asking all the time, but i am sure you will get used to my nagging.!(my husband has )