UK Keratoconus Self-Help and Support Association

When I was five I had an illness called Steven Johnsons Syndrome, which left me with very limited vision. The affect of the illness has severly damaged my corenas, leaving me with almost no vision in one eye and a little bit in the other. I now ware Scleral Lenses which have made a huge difference to the vision in my good eye and make both eye more comfortable. When I was younger I was told that It would be worth trying a cornea transplant as the surface of my eye is so badly damaged that it was almost certainly reject it. There is another proceedure call OOKP, which involves using a tooth to create a replacement cornea, but this is complexed and although I have been told I am suitable, I don't really know enough about this and would really like to speak to someone who has had this done.

Can anyone offer me any advice or tell me how I may be able to contact someone who has had this operation?

If you can help, please can you email me at bartondan1@aol.com

Regards

Daniel

Have you Googled OOKP, there are several articles on the subject.

Daniel

Welcome to the forum. I hope that the articles that were eMailed to you wre fo some help, but for the sake of others who are reading this string, I found this a particularly helpful explanation:

http://www.ndc.com.sg/Newsroom/MediaRel ... 5May05.htm

Let us know if we can be of any further help, and please also let us know how you get on.

Yours aye

Andrew