UK Keratoconus Self-Help and Support Association

Hi all i am Salah al-farhoud from Kuwait and i have Keratoconus i know this is a UK group but this is one of the best sites i found on the net . I do hope that i can be a Productive member of this group and that I can share my experience with you.

Welcome Salah Al- farhoud,

The group seem happy to welcome 'foreigners'. I am living in South Africa, but have use this site regularly for support through tough times. It helps to know you are not alone.

Hello Salah al-farhoud and welcome to the forum.

As Melissa has shown, we are an international community of people with keratoconus, and our membership is as varied as it is international. While much of the information posted on this site is based on the UK experience (for example information about the cost of contact lenses and availability of different therapies), the core intent of the forum is not bound by jurisdiction. We are a support group and we welcome those seeking or offering support from everywhere.

Yours aye

Andrew

Thank you guys you can call me Salah or Farhoud, from seeing this forum for a couple of weeks I know that I am not going to be alone and I am sure to find support and cheers from this site and I am not going to hastate giving it to any

Here is some info about myself, I am a 29 years old IT consultant from Kuwait and I was diagnosed with KC 2 months ago in both eyes , Prior to that I knew nothing about KC and like most people went to an ophthalmologist to get my eye examined thinking that’s it just a normal vision problem any way after being diagnosed I went on line to get as much about the condition as I could and check for ways for treating it finding that C3-R was the one of the promising ways for controlling it I decided to do it and when I went to get a second opinion from a cornea specialist I was happy to find that he is qualified to do the procedure and decided to go ahead and under go it 3weeks ago.
That sums it up somewhat
Yours Salah

Thank you Salah for permission to use your first name. Please call me Andrew.

CXL (C3R) is indeed a promising new method of controlling Keratoconus. It is good that you are both suitable for this treatment and that your Ophthalmologist is qualified to offer this treatment. Please let us know how you get on.

More and more people are having CXL, and in time it will become clear whether it is a panacea for Keratoconus or more limited in its usefulness. My keratoconus was pretty well advanced before CXL became available, with deep scarring in both eyes. It now seems possible that, if the condition is diagnosed early enough, many people will never see the deterioration that used to be common.

Andrew

Sure thing Andrew
Yes thank God for that for that, I was planning to go to Europe or the state to undertake it but was happy to know that they are adopting it here in Kuwait and I want to make sure that people in and around Kuwait vicinity know about it so they can benefit from the procedure there are 2 Ophthalmologist that does it as far as I know.
Yes I can see that a lot of people are having CXL now and I am sorry to hear that about your case Andrew and I do hope that People don’t have to suffer from illness in any form.
Salah

Salah

Don't be too upset about my case, or any of us who had KC before you: we got the best treatment available in our time; your job is to make sure that you get the best treatment in your time and those who follow will get the best treatment in theirs. This way we all enjoy the benefits of a science that continues to unfold.

I made choices about my treatment and these choices were based on the best information available to me at the time. Information came from a number of places, including my ophthalmologist, my optometrists and the Keratoconus site. I have no regrets about any of the choices I made and I never look longingly at the treatments now available and wonder "what if ..." . That is a vanity that leads only to heartache!

It may be that CXL or INTACS (the new treatment 'kids on the block') will prove very effective for some people, and it is my earnest hope that CXL is effective for you. What the future holds is still hidden from our view, but it is good to know that the science continues to develop.

All the best

Andrew

(subsequent edit) ...
I have looked again at this post, and think that it may seem a little "tetchy"; if so, I apologize unreservedly. In my head it sounds friendly and was intended to be encouraging .