Could use a second opinion - any recommendations?
Posted: Tue 01 Mar 2005 7:31 pm
Hi
I’m a 32-year-old man, living in Liverpool, who was diagnosed with pellucid marginal dystrophy at the age of 17. Since then, I’ve been very lucky, as I have been able to get by quite happily with ‘normal’ soft contact lenses, albeit they have to correct around –11 diopters and a significant amount of astigmatism, as the distortion caused by the PMD is not across my line of sight, particularly in my right eye.
Until very recently, the vision with contact lenses in my left eye was acceptable and the vision in my right eye was actually very good with soft contact lenses. However, I lost my right lens around New Year and have since had two replacement lenses, which are supposed to be exactly the same, but do not correct my vision properly.
Instead of having good vision in my right eye, I now have a definite ‘shadow’ or ‘ghosting’, particularly with lights and text. However, I don’t have this problem when wearing glasses, so it seems to be a problem with the contacts themselves. I am also finding that the left eye’s vision has worsened as well (and this lens was a replacement I got just before Christmas, as I’d had the ‘old’ one for six months or so).
Having spoken to the doctors at the Royal Liverpool Hospital (IÂ’m under a Mr. Batterbury), it seems they do not have much experience dealing with kerataconic patients, let alone someone with PMD. I think theyÂ’re rather sick of the sight of me, as IÂ’ve been in and out several times in the last couple of months, with no progress being made on a solution to the problems IÂ’m experiencing.
I was wondering if anyone could recommend both a doctor and/or optometrist who has experience with dealing with patients with PMD. IÂ’d even be willing to pay for private consultations if that proved necessary. In the North West would be ideal, but am happy to travel further afield if itÂ’s needs be.
If anyone has a similar experience to the one I describe above, i.e. vision suddenly being worse following a replacement lens, and any insights as to what, if anything, might have caused this to happen, IÂ’d be most grateful to hear them. IÂ’m well aware it could be just one of those things and the disease has simply progressed after standing still for the last few years!
Many thanks in advance for any help/replies.
I’m a 32-year-old man, living in Liverpool, who was diagnosed with pellucid marginal dystrophy at the age of 17. Since then, I’ve been very lucky, as I have been able to get by quite happily with ‘normal’ soft contact lenses, albeit they have to correct around –11 diopters and a significant amount of astigmatism, as the distortion caused by the PMD is not across my line of sight, particularly in my right eye.
Until very recently, the vision with contact lenses in my left eye was acceptable and the vision in my right eye was actually very good with soft contact lenses. However, I lost my right lens around New Year and have since had two replacement lenses, which are supposed to be exactly the same, but do not correct my vision properly.
Instead of having good vision in my right eye, I now have a definite ‘shadow’ or ‘ghosting’, particularly with lights and text. However, I don’t have this problem when wearing glasses, so it seems to be a problem with the contacts themselves. I am also finding that the left eye’s vision has worsened as well (and this lens was a replacement I got just before Christmas, as I’d had the ‘old’ one for six months or so).
Having spoken to the doctors at the Royal Liverpool Hospital (IÂ’m under a Mr. Batterbury), it seems they do not have much experience dealing with kerataconic patients, let alone someone with PMD. I think theyÂ’re rather sick of the sight of me, as IÂ’ve been in and out several times in the last couple of months, with no progress being made on a solution to the problems IÂ’m experiencing.
I was wondering if anyone could recommend both a doctor and/or optometrist who has experience with dealing with patients with PMD. IÂ’d even be willing to pay for private consultations if that proved necessary. In the North West would be ideal, but am happy to travel further afield if itÂ’s needs be.
If anyone has a similar experience to the one I describe above, i.e. vision suddenly being worse following a replacement lens, and any insights as to what, if anything, might have caused this to happen, IÂ’d be most grateful to hear them. IÂ’m well aware it could be just one of those things and the disease has simply progressed after standing still for the last few years!
Many thanks in advance for any help/replies.