Ive had a really terrible day. I have had keratoconus for the last 20 plus years and had the usual ups and downs which come with the condition. I now use Rose K lenses and manage relatively well.
However my dread has always been that I would pass this on to my daughters. My daughter is nearly 18 and has just started her first full time job at the Nat West. I knew she was having problems with her right eye but at her last test in May we were assured there was no sign of KC.
However we've been back today to be told that the cornea in her right eye is looking distorted and that she needs to be referred to the eye hospital. I feel physically sick, I didnt want this for my daughter and I feel totally responsible. The optician says there's no sign of any change in the left eye.
I wondered what was available now for people who are newly diagnosed??
I hear a lot of you talking about intacs - What are these???
Can some people just be affected in one eye???
Can your cornea look distorted for any other reason than keratoconus?
Sorry if this sounds dramatic but thats how I feel. Really need some words of support from you guys.
I know I may be jumping the gun as she hasnt been officially diagnosed but all the facts point to the fact that she is developing KC.
I.ve tried to reason with myself saying that she is better off than I was. When I was diagnosed 20 years ago I knew nobody with KC and nothing about it. I know there as been great advances in the last 20 years and at least I.ll be able to guide her through it.
Thanks for listening
Libby (stressed out mum)
![Sad :(](./images/smilies/icon_sad.gif)