Tips for living with KC! Add yours...

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rosemary johnson
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Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Re: Tips for living with KC! Add yours...

Postby rosemary johnson » Mon 18 Aug 2008 10:39 pm

Response : big bottles of saline can be used to fill up contacts before putting them in, as with amidose. The difficulties with it are: getting the lens full with =out getting bubbles in the saline filling, and b) not splashing the saline everywhere and ending up using far moe of it becuaes of the way it gollops out of big bottles.
The other advantage of aidose little tubes is that you don't want to be lugging the big bottles about in your handbag/manbag/briefcase/pocket.

Tips: develop an individualistic style in big hats with big shady brims. Apart from shading the eyes they are good recognition symbols at picnics, in hospital waiting rooms,e tc and may het you noticed at rOAYL aSCOT.
Set a new trend in the trendiest of watering holes by drinking liqueurs from your old scleral lenses (sorry Ken)
Take a trip to your nearest RNIB office to look round their selections of special kit for people with less-than-perfect vision - everything from HUGE PRINT scrabble to talking computers, to varying shapes/sizes and colours of self-adhesive lumps - I have a selection stuck to my computer keyboard so I can tell which function keys are which even when I don't have the contact lenses in.
While you're there, gen up on the Access To Work scheme and the Disability Discrimination Act.
Only mention the name "Fairy Liquid" when you have the stamina for a long thread.....!!
Rosemary

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Louise Pembroke
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Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: Tips for living with KC! Add yours...

Postby Louise Pembroke » Mon 18 Aug 2008 11:03 pm

'manbag'?!!! :lol: I wanna see a picture of a manbag! Come on guys.
Liquers from scelerals, LOL that's brilliant, I knew they had a use [sorry Ken].
Director of Sci-Fi and Silliness and FRCC [Fellow of the Royal College of Cake]

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dweezil1968
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Posts: 92
Joined: Mon 25 Apr 2005 10:09 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: brighton

Re: Tips for living with KC! Add yours...

Postby dweezil1968 » Tue 26 Aug 2008 9:10 am

there are some great tips here and things i do without knowing it now!
someone told me once ( I havent tried it) if you drop a hard lens on the floor you can get it by putting a tights over the end of the hoover and then the lens won't go up the pipe, as it were.

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Andrew MacLean
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Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Tips for living with KC! Add yours...

Postby Andrew MacLean » Tue 26 Aug 2008 11:32 am

My office cleaner used to find my dropped lenses in exactly that way!
Andrew MacLean

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Louise Pembroke
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Joined: Sat 21 Aug 2004 11:34 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: Tips for living with KC! Add yours...

Postby Louise Pembroke » Tue 26 Aug 2008 12:49 pm

I use a torch to help show it up
Director of Sci-Fi and Silliness and FRCC [Fellow of the Royal College of Cake]

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dweezil1968
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Posts: 92
Joined: Mon 25 Apr 2005 10:09 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: brighton

Re: Tips for living with KC! Add yours...

Postby dweezil1968 » Tue 26 Aug 2008 12:52 pm

Louise Pembroke wrote:I use a torch to help show it up

only when its dark tho............

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pepepepe
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Posts: 137
Joined: Sat 16 Aug 2008 12:13 pm
Keratoconus: Yes, I have KC

Re: Tips for living with KC! Add yours...

Postby pepepepe » Wed 27 Aug 2008 3:10 am

Get a second opinion even if everything seems wonderful, its the best time to.

Pepe

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Val G
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Posts: 219
Joined: Wed 12 Oct 2005 7:01 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: West Midlands

Re: Tips for living with KC! Add yours...

Postby Val G » Thu 28 Aug 2008 9:04 am

Allow eyes to 'clear' in the mornings before inserting lenses. I need about an hour and a half or I suffer the consequences.

Invest in a dimmer pull cord for the bathroom light. Great on those winter mornings when you have to get ready but the light is TOO bright!


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