The truth shall set you free

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Matthew_
Champion
Champion
Posts: 814
Joined: Thu 13 Jul 2006 3:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Gallafrey

Postby Matthew_ » Thu 28 Jun 2007 4:41 pm

Tommy,
I can't see Keratoconics needing contact lenses as growth industry, do you? KC is too rare to consider commercial exploitation as a motive for not curing it.
Image

Get a life...get a dog!

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tommy.dean
Regular contributor
Regular contributor
Posts: 111
Joined: Tue 10 Jan 2006 11:13 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and good vision
Location: Blackburn
Contact:

Postby tommy.dean » Thu 28 Jun 2007 7:46 pm

Your probley right on the contacts thing but desisions are being made that arn't in the best interest for KC'ers the nhs hospital i used to be under told me last month that the nhs had pulled the funding on laser correction for post graft patients two years ago, which is just a slap in the face really when keratoconus shouldn't be treated with penetrating keratoplastys anyway, like i said there many things but just pure ignorance towards our disease by the nhs is the main thing.
tom

Stubdoo
Newbie
Newbie
Posts: 2
Joined: Sat 10 Nov 2007 11:16 pm
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids

Re: The truth shall set you free

Postby Stubdoo » Sat 10 Nov 2007 11:25 pm

Hi Tom, i think what you are saying is very interesting, you mentioned that you have read some research on C R3 treatment, could you please point me in the right direction as i would like to have a read.

cheers
stu :lol:

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Marc Pritchard
Contributor
Contributor
Posts: 42
Joined: Wed 09 May 2007 12:12 pm
Keratoconus: Yes, I have KC
Location: East London, for now

Re: The truth shall set you free

Postby Marc Pritchard » Tue 13 Nov 2007 8:59 am

Stu,

Go to the website at the start of this thread, there are whole forums dedidcated to C3-R.

I myself ahave decided to go forward with both Intacs and C3-R and am doing it privately so that I can have good vision when it counts (I'm 30 and have a few things I want to do in the next decade). My simple thoguht is that I want to manage KC and not have KC manage me, which with contacts that is exactly whats happening.
Reality is that which, when you stop believing in it, doesn't go away.

Philip K. Dick


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