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General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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Jon House
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Posts: 22
Joined: Sun 29 Apr 2007 8:40 am
Location: Birmingham

Hi Everybody

Postby Jon House » Mon 18 Jun 2007 8:47 pm

Hi, my name is Jon House and I was diagnosed
a couple of months back. I've been to my first optometrist appointment today to trial soft lenses which unfortunately didn't work so I'll be going back in a couple of weeks to try RGP's and at the moment I'm finding it all a bit frustrating, but at the same time appreciate that at least the ball is rolling. When diagnosed I searched for every bit of info I could lay my hands on and it was then I came across this site and joined the group. I would just like to say a big thanks to everybody for all the info on here which has been great so far and I'm sure I'll be referring back on a regular basis for what I'm sure is going to be a long and eventful journey.

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Mon 18 Jun 2007 8:54 pm

Jon,

Welcome to the forum.

I see you are in the West Midlands, have you signed up to the main group to get snail mail invites to the regioanl meetings?

My preperations for the launch of mens health week last monday meant I could not make the prevous weeks group meeting.

Hope the RGP fittng goes well.
Gareth

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Jon House
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Posts: 22
Joined: Sun 29 Apr 2007 8:40 am
Location: Birmingham

Postby Jon House » Mon 18 Jun 2007 9:15 pm

Hi Gareth,

I received an invite to the last Birmingham meeting but as I've only recently joined the group I already had plans. However I'm hoping to make future meetings and hook up with fellow members as I've yet to meet anybody who has even heard of the condition, much less understand what is involved.

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Hermione Granger
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Posts: 10
Joined: Sun 17 Jun 2007 10:14 pm
Location: Midlands

Postby Hermione Granger » Mon 18 Jun 2007 9:16 pm

Hi from another Midlander. I'm at the other end of the whole experience so if I can give you any advice or support, just let me know. I found it an incredibly lonely journey because I was too useless to find this site earlier so you've already made a better start to coping with the whole experience than I did. Good luck.

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Jon House
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Posts: 22
Joined: Sun 29 Apr 2007 8:40 am
Location: Birmingham

Postby Jon House » Mon 18 Jun 2007 9:24 pm

Thanks Hermione. I'm sure I'll need all the advice and support I can get as time goes by!

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donna
Forum Stalwart
Forum Stalwart
Posts: 360
Joined: Sat 16 Dec 2006 5:40 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Cumbria

Postby donna » Tue 19 Jun 2007 12:02 pm

I have only just got my rgps ,I was dreading them tbh but now I love them! I was diagnosed around 7 months ago now and the KC rapidly progressed in my left eye and is now rapidly progressing in my right eye. But I am able to wear my lenses nearly all the time so dont have to manage the poor vision much

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Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Tue 19 Jun 2007 4:56 pm

Jon! Welcome to the forum!

All the best with your lens fitting. And welcome to the journey, it is good to know that you will be travelling with us.

Andrew
Andrew MacLean

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Matthew_
Champion
Champion
Posts: 814
Joined: Thu 13 Jul 2006 3:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Gallafrey

Postby Matthew_ » Tue 19 Jun 2007 7:48 pm

John,
Welcome. It can be very frustrating getting your lenses as it takes time and then you have to get used to them. But when you get your eye-sight back, woah! :shock: Its well worth the wait.
All the best
Image

Get a life...get a dog!

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Sarah M
Chatterbox
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Posts: 278
Joined: Sun 15 Oct 2006 12:02 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Scotland
Contact:

Postby Sarah M » Tue 19 Jun 2007 8:10 pm

Hi Jon :)

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mike scott
Chatterbox
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Posts: 188
Joined: Mon 19 Jun 2006 5:17 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and good vision
Location: manchester uk
Contact:

Postby mike scott » Tue 19 Jun 2007 10:14 pm

Hi Jon
Welcome to the family , youre in a great place.

best wishes
Mike
onwards and upwards


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