Dutchman with KC in UK, Eye Hospital Rotterdam
Posted: Mon 28 May 2007 5:10 pm
Hi all,
I'm from The Netherlands spending almost 7 weeks in London right now for business. I came upon this forum by English colleagues and they also tipped the Moorfields hospital to have a look around and analyse my options in the UK and I'm also here to share my experiences from The Netherlands as well.
I've been reading on this forum for the last couple of hours and I find it very interesting so far and recognize a lot of problems off course.
I am 27 and I live in Rotterdam. The eye hospital in Roterdam (which should be one of the best in Holland) has diagnosed KC a couple of months ago after deteriorating vision in my left eye and a horrific uveitis infection in my right eye. For the moment only my left eye is affected by KC, god thanks!
By the way I have worn soft toric contact lensens for the last 10 years.
Lately I have first tried RGP lenses but I have always been quite intolerant to lenses (red eyes, drieness, especially inner part gets red) so now I have the same RGP lens for my left eye as piggyback system. Right eye still 'normal' soft toric lens. However vision with piggy back system in left eye or RGP immediately is just 70% and on good days maybe 80%. And still my eye gets red quite easily with piggyback system, I even have some eye lubrificating drops for approximately three times a day. I work in IT and sit behind a computer screen for most of the day unfortunately. But I love my job....
I feel the the lenses all day which is quite uncomfortable according to me, with a lot of eye rubbing...which is not good with KC ???
I'm having an appointment in 2 weeks to get a scleral lens fitted. Hopefully this is better? Maybe some polishing of the RGP ridge might be a solution to the redness but I doubt it.
I've proposed cross linking to stabilize the progression in Rotterdam but the cornea specialist still sees it is a 'grey area' so no option for the moment. Lasering is out of the question in Rotterdam which I can understand with the thin cornea. How is this in the UK, only in private clinics or is cross linking also available in Moorfields hospital?
But I have the feeling the vision deteriorates quite fast in my left eye as I was able to wear normal soft toric lenses in this eye like 3 months ago with reaonable good vision. This is out of the question right now and without any lens my vision is already dramatic. Anybody experienced such a fast deterioration in just a couple of months?
I have asked for a second opinion in the hospital of Leiden in The Netherlands as well, but this is only on the 9th of august....
For the moment I pray my right eye keeps inaffected and I'm looking forward to any suggestions you people might have in the UK.
Regards and best wishes to all your eyes,
Ronald van den Brink
I'm from The Netherlands spending almost 7 weeks in London right now for business. I came upon this forum by English colleagues and they also tipped the Moorfields hospital to have a look around and analyse my options in the UK and I'm also here to share my experiences from The Netherlands as well.
I've been reading on this forum for the last couple of hours and I find it very interesting so far and recognize a lot of problems off course.
I am 27 and I live in Rotterdam. The eye hospital in Roterdam (which should be one of the best in Holland) has diagnosed KC a couple of months ago after deteriorating vision in my left eye and a horrific uveitis infection in my right eye. For the moment only my left eye is affected by KC, god thanks!
By the way I have worn soft toric contact lensens for the last 10 years.
Lately I have first tried RGP lenses but I have always been quite intolerant to lenses (red eyes, drieness, especially inner part gets red) so now I have the same RGP lens for my left eye as piggyback system. Right eye still 'normal' soft toric lens. However vision with piggy back system in left eye or RGP immediately is just 70% and on good days maybe 80%. And still my eye gets red quite easily with piggyback system, I even have some eye lubrificating drops for approximately three times a day. I work in IT and sit behind a computer screen for most of the day unfortunately. But I love my job....
I feel the the lenses all day which is quite uncomfortable according to me, with a lot of eye rubbing...which is not good with KC ???
I'm having an appointment in 2 weeks to get a scleral lens fitted. Hopefully this is better? Maybe some polishing of the RGP ridge might be a solution to the redness but I doubt it.
I've proposed cross linking to stabilize the progression in Rotterdam but the cornea specialist still sees it is a 'grey area' so no option for the moment. Lasering is out of the question in Rotterdam which I can understand with the thin cornea. How is this in the UK, only in private clinics or is cross linking also available in Moorfields hospital?
But I have the feeling the vision deteriorates quite fast in my left eye as I was able to wear normal soft toric lenses in this eye like 3 months ago with reaonable good vision. This is out of the question right now and without any lens my vision is already dramatic. Anybody experienced such a fast deterioration in just a couple of months?
I have asked for a second opinion in the hospital of Leiden in The Netherlands as well, but this is only on the 9th of august....
For the moment I pray my right eye keeps inaffected and I'm looking forward to any suggestions you people might have in the UK.
Regards and best wishes to all your eyes,
Ronald van den Brink