please share that with me...........

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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eman samir
Regular contributor
Regular contributor
Posts: 83
Joined: Sat 26 Aug 2006 2:31 am
Keratoconus: Yes, I have KC
Vision: Spectacles
Location: egypt

please share that with me...........

Postby eman samir » Tue 27 Mar 2007 10:37 pm

I would like to get to know a little bit more about everyone.PLEASE SHARE ME THAT WITH ME.
Hope nobody minds.

Name:
Age:
General Location:
How long since you were diganosed?:
Which eye is your bad eye?:
Have you had surgery?:
Hardest thing for you about living with KC?;
for indeed,it is not the eyes that grow blind but it is the hearts which are within the bosoms that grow blind...

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John Smith
Moderator
Moderator
Posts: 1941
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Tue 27 Mar 2007 11:31 pm

Name: John Smith
Age: 41
General Location: SE London
How long since you were diganosed?: About 15 years
Which eye is your bad eye?: Hard to say now; originally my right.
Have you had surgery?: Yes, in both eyes
Hardest thing for you about living with KC? Explaining it to everyone
John

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Andrew MacLean
Moderator
Moderator
Posts: 7704
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Wed 28 Mar 2007 6:36 am

I am 57 and have had KC all my adult life. Yes, I have had surgery in both eyes.

The worst bit about KC for me is that I do not know that the sight I have today will still be with me tomorrow.

The best thing is that with help and support I can live a normal and richly fulfilling life.

Andrew
Andrew MacLean

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GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Wed 28 Mar 2007 6:57 am

Name: Gareth Beynon
Age: 37 1/2 :D

General Location: Warwickshire

How long since you were diganosed?: 21 years since first diagnosed, 2004 KC returned in right eye.

Which eye is your bad eye?: Right

Have you had surgery?: Right 1987; Left 1988

Hardest thing for you about living with KC?; Motorsport licence suspended eventhough I get perfect vision with lenses. Without lenses only thing I can not do is drive.
Gareth

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Alison Fisher
Forum Stalwart
Forum Stalwart
Posts: 334
Joined: Sat 18 Mar 2006 12:56 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Leicester

Postby Alison Fisher » Wed 28 Mar 2007 5:31 pm

Name: Alison Fisher
Age: 44
General Location: Leicester, UK
How long since you were diagnosed?: Twenty six years.
Which eye is your bad eye?: Right now they're pretty much identical.
Have you had surgery?: Yes, on both eyes.
Hardest thing for you about living with KC?: Pre graft - coping with my lenses. Post graft - avoiding fluorescent and halogen lighting, both of which are very uncomfortable for me - and both of which seem to be everywhere I go! :( But on the bright side (no pun intended :P ) if that's the worst bit then I've nothing really to complain about have I? :D
grafts in 1992 and 1996

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mike scott
Chatterbox
Chatterbox
Posts: 188
Joined: Mon 19 Jun 2006 5:17 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and good vision
Location: manchester uk
Contact:

Postby mike scott » Wed 28 Mar 2007 5:53 pm

mike scott

age 40

location Manchester

diagnosed 22 yrs ago

worst eye left, impending transplant

worst thing about KC: coping with its unpredictability i;e when it stops me doing what i want from time to time.

best thing about KC: in some ways its made me a stronger person emotionally
onwards and upwards

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kerrie phillips
Regular contributor
Regular contributor
Posts: 82
Joined: Wed 28 Feb 2007 7:34 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: east anglia

Postby kerrie phillips » Wed 28 Mar 2007 7:07 pm

Kerrie-louise phillips
30
married 3 children
lowestoft (near yarmouth/nowrich) east anglia
right eye worse
diagnosed aug 06
however existed alot earlier
Hardest thing for me is not being able to pass driving test because i cant read no plate, i have to rely on everybody else for lifts or hang around hours for buses

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Sarah M
Chatterbox
Chatterbox
Posts: 278
Joined: Sun 15 Oct 2006 12:02 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Scotland
Contact:

Postby Sarah M » Wed 28 Mar 2007 7:07 pm

Name: Sarah
Age: 25
General Location: Aberdeen
How long since you were diganosed: 13 years
Which eye is your bad eye?: Right
Have you had surgery?: Yes
Hardest thing for you about living with KC?: Getting up early to put lens in - seriously - just always got on with it, but hardest thing at the moment is probably worrying about my good eye getting worse.

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debbieo
Contributor
Contributor
Posts: 17
Joined: Sun 19 Nov 2006 9:33 pm
Location: Staines

Postby debbieo » Wed 28 Mar 2007 7:12 pm

Name: Debbie
Age: 39
General Location: Staines
How long since you were diganosed: 3 months, but know now that I've had it much longer
Which eye is your bad eye?: Right
Have you had surgery?: No
Hardest thing for you about living with KC?:
I'm very lucky it's really mild and I shouldn't complain. But I'm really hacked off that I couldn't have my eyes laser treated after saving up and psyching myself up for so long

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Pat A
Forum Stalwart
Forum Stalwart
Posts: 661
Joined: Fri 08 Dec 2006 9:42 pm
Keratoconus: No, I don't suffer from KC
Vision: Contact lenses
Location: Herts

Postby Pat A » Wed 28 Mar 2007 8:11 pm

Name: Pat
Age: a little over 50 :lol:
General Location: Hertfordshire
How long since you were diagnosed?: 4 months - but now understand I've probably had it for 25+ years in a milder form...
Which eye is your bad eye?: Left slightly worse than right but have lazy right eye
Have you had surgery?: Not for KC, but have had cataract surgery
Hardest thing for you about living with KC?; Not being able to work whilst awaiting diagnosis and subsequently waiting for lenses: Not being able to read, having to stop driving, and having to make big changes and adjustments to my life, late in life!
Pat

We do not stop playing because we grow old;
We grow old because we stop playing.


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