need your opinions

General forum for the UK Keratoconus and self-help group members.

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gavin john
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need your opinions

Postby gavin john » Wed 14 Mar 2007 8:14 am

do you think they will ever in my life time find a cure for kv.? im 28. would love it if they could though 8)

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GarethB
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Keratoconus: Yes, I have KC
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Postby GarethB » Wed 14 Mar 2007 9:03 am

I've had KC for 20 years now and there are far more treatment options now than there were then.

If I was 17 and diagnosed with KC now and the rate of progression I had, today there would be no need for a graft because of the many lens options and other surgical methods before considering a graft.

However 20 years ago there was no option because there was not so much about.

Things do move on quickly, sho who knows in another 20 years there may be a cure.
Gareth

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Andrew MacLean
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Postby Andrew MacLean » Wed 14 Mar 2007 9:48 am

There is research going on all the time. Up to now the endeavour has been to find more effective ways of managing the condition: hence the application of lenses, C3R, intacs, PRK, Grafts, etc.

Some work is being done on the molecular basis of Keratoconus. This holds, at least, the potential for a KC specific drug therapy.

Will they ever find a cure? I really do not know. Will KC be managed more effectively in the years to come; I am sure it will.

Andrew
Andrew MacLean

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gavin john
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F.A.O ANDREW & GARETH

Postby gavin john » Wed 14 Mar 2007 10:43 am

THANKS FOR YOU OPINIONS AND ADVICE ITS HELPED ME ALOT.

Best REGARDS
Gavin

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Sweet
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Postby Sweet » Wed 14 Mar 2007 5:29 pm

I am 30 and would love there to be a cure!! I think though that medics have come on so much with new surgery techniques that the aim is to mange the condition though there is still some research on trying to find a cause. This will hopefully lead to solving KC! New lenses are being developed all the time so i think that it is good to keep up to date with how to look after your eyesight until we have a break through!!!
Sweet X x X

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gavin john
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f.a.o sweet

Postby gavin john » Thu 15 Mar 2007 8:20 am

thanks for your opinions and advice
its greatly appreciated

best regards

gavin

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Alison Fisher
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Postby Alison Fisher » Thu 15 Mar 2007 12:19 pm

I agree with Gareth. :D I was diagnosed in the early 1980's and since things have changed out of all recognition.

I remember thinking how fortunate I was not to have been born a generation or so earlier as I would have been well and truly sunk, so imagine what things could be like a generation or so in the future. :D
grafts in 1992 and 1996

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gavin john
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f.a.o alison

Postby gavin john » Thu 15 Mar 2007 1:53 pm

thanks for your reply and your opinion.

You all have been a great help


Best Regards

Gavin

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kerrie phillips
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Postby kerrie phillips » Fri 16 Mar 2007 4:48 pm

When my lens specialist said he thought i needed surgery , he made me an appointment that same day for the cornea specialist.
He said he did not want to do surgery yet, he also said that at the momment there are many things being researched some of which are in the process of development. He feels that in a couple of years there are going to be many more options instead of going to surgery. If they are cures who knows? more then likely to be treatment options but if the likes of me and you can get by with lenses till then and avoid surgery, by having some other radical option open to us it can only be a good thing. I live in hope to.
Although i knew something was not right from the age of 25 i was only actually diagnosed last year i am 30.
Thats plenty of time for them to find a cure before we have greying hair and zimmas!!

"Saas rahe samma aas"[quote][/quote]

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Steven Williams
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Postby Steven Williams » Fri 16 Mar 2007 6:53 pm

Hiya John,

Welcome here

Treating the cause is not a powers that be commercially viable solution. Treating the symptom is and that is what the medical profession is governed/trained/conditioned to do.

Websites like this IMO provide an opportunity to breakdown the status quo and are totally patient focused, so in answer to your question imo yes there is a chance for a cure for KC in your lifetime.

Check out this thread and watch the google vid of Philip Day I've put on page 4 to see were I am coming from:-

http://www.keratoconus-group.org.uk/for ... c&start=30


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