I actually don't know if we have real disability units here, but thankfully I have to say that there is no problem with getting help, most of my professors know that I need my own enlarged sheets, everyone is very helpful and understanding, if i mention the problem. But sometimes I'm just tired of telling and asking for help, if I can avoid it, so it is my own fault if there are problems. I haven't worn sunglasses or baseball caps on stage yet, maybe I should ask about that, I guess it would depend on the conductor/ensemble.
I already read the leaflet and I must say that it is great! It informs teachers about how to support students with KC and explains all the problems that might occur. I think I will translate it and hand it out to my teachers.
Thanks again and all the best
Michaela
Anne Klepacz wrote:Hello Michaela,
I don't know what help is available for students in Austria - here in the UK most colleges and universities have a disability unit which helps students who have health or sight problems. Is there anything like that in Austria? I'm also pretty sure there's an organisation here which provides an enlarging service for sheet music - again maybe something to explore in your country. Not sure what you can do about on stage lights. Many of us wear sunglasses or baseball caps to help cut out glare, but maybe that's not acceptable in an orchestra!
Hopefully things will improve a lot for you when you're able to have a graft. In the meantime, you're not alone - lots of us can relate to the effects on emotional well-being that you describe. We've produced a leaflet on 'Supporting Students with Keratoconus' which you can download from our site http://www.keratoconus.group.org.uk/sit ... tions.html
I think you'll recognise a lot of what it says there!
I know we have other musicians among our members - maybe one of them will have some other ideas for you.
All the best
Anne