UK Keratoconus Self-Help and Support Association

Was just wondering is it just me or gets really tired when i don't have lenses in and can't see well?

I know that my headaches come from this but it is so bad when i can't do anything until i put lenses in and can focus!

I have a problem though in that i have always been unable to lenses in until i have a shower and wash my face!! Really hard work when i want to spend a day doing nothing!!! I just don't feel clean enough to put lenses in until i have stood under the shower and washed my face!! Anyone feel the same?? LOL!!!

Sweet X x X

I've been very tired for weeks now, and have put it down to struggling with this loose stich in my grafted eye. I have been off work for a week and feel as if I have done nothing but eat and sleep but still feel terrible.

Sweet
I have been really tired for many months now - and I can't see very well - certainly not very clearly - with or without my soft lenses. My GP suggested that my tiredness was at least partly down to my poor eyesight - she explained that I was having to do everything twice - first use my brain to actually identify what I was seeing - and then secondly to do whatever I needed to do with that! A good example is reading - a normal sighted person would read the text and interpret it all at the same time. We don't - we have to first read it - and then secondly interpret it.
As for the showers - sorry - I'm a "bath" person myself! But I can't put my lenses in for at least an hour after getting up - don't know why.

Pat

Pat

I'm a bath person too, but can't put my lens in first thing. If I do it just seems to collect all the gunk in my eye from sleeping!

It might be because I choose to go partially sighted as much as I choose to be sighted that a lack of vision has no effect on how tierd I get.

It could be that the weather is so cr4p that you have a bit of SAD and need those natural day light lamps that help.

I reckon I am in the same boat as Gareth. I have always moved about the house without lenses so that when I bcame unable to wear them it was an easy step to go from "private blindness" to public.

I can understand that if you were trying all the time to see better, that would be quite exhausting. The key to successful living without lenses is to be recconciled to being very short sighted.

Andrew

Hehe i like baths as well but they are more relaxing so i have one at night!! If i had one in the morning i wouldn't get out!! LOL!!

I do go around the house without lenses in but then i am so tired that i don't get anything done.

I do need the break from them though as working twelve hour shifts i don't have a chance not to!

Thanks everyone for your replies!!

Sweet X x X

Maybe as you say Andrew it's because I'm trying to see better all the time as
I guess my difficulty seeing is a bit different to yours. I'm only very slightly shortsighted - minus 1.75 & minus 0.75 especially since the cataract op - but it's the multiple images/ghosting I find so exhausting. So although I suspect I can "see" relatively well compared with many of you, everything is blurred & confusing - and thus tiring. Maybe I'm trying too much!
Pat

LOL! That would be dam confusing and difficult! Your brain is trying to work out what it is seeing but can't because it is a multiply image of nothing!

Sweet X x X

In the house, try getting about without looking. I doin;t mean close your eyes, just move about the space with which you are most familiar without looking where you are going.

Most people have a very good sense of space, and for much of the time we get through familiar routines at home without actually needing to look where we are.

You will find it far less tiring than forcing yourself to focus on things all the time. It does mean being careful to hold the banister on the stairs. Watching television can be a pain, but I enjoy the wireless so tv is not much of a loss for me.

If you think something is untidy, but can't see it very well; let it be untidy, or get somebody else to sort it out. Explain that you can't see properly'; your family will understand and will enjoy helping you out.

Andrew