UK Keratoconus Self-Help and Support Association

Has anyone on the forum tried Restasis Dry eye drops? They have cyclosporin in them.
I have been given a prescription for them,and i have to order them from America.
They are quiet expensive. Just wondered if anyone had any info on them.

Thanks Anne

These sites may help;

Restasis

Restatis Patient Information

This might help too What is dry eye?

Not read about the drug it has at the bottom of the page, but the diagram describes the tear compositions and what dry is.

Hope this helps

Can anyone help me.
As some of you may of realised i not a wizz on the computer
I am trying to order some Restasis cyclosporin emulsion 0.05?
They have to be ordered from America but i can not find a site that will post overseas.
I have two prescriptions that i can send off.
Also these drops are expensive so i need to make sure i am getting it right.
If anyone has a spare moment and can have a look and find what i am looking for it would be great.

I would ask hubby but me+hubby+ computer normally= arguement

Anne,

I have asked the pharmacists at work and it appears that Restasis is not on the UK list of drugs. This might be why you are having problems for these to be shipped overseas or a UK pharmacist to import them.

It is also possible that the European name is different. At work we can only find Restasis on North American/Canadian web sites.

Presumably the person writting the prescription has had it fulfilled before so it would be worth calling them and explain that you have been unable to find someone to supply this.

The manufacturer is Allegan;
Allergan Restasis Product Page and go to Contact Us at the top of the page and complete the on line enquiery.

In the mean time I have a collegue who is seeking further advice as to how to get hold of it for you. It is the sort of thing she has to do to stay a licenced pharmacist


Regards

Gareth

Whopeee, I think we have a way to help you, go direct to your PM's.

Get your dialing finger ready!

Anne
Cyclosporin eye drops are supposed to be very effective for dry eyes, but not licensed in UK at present. I know an ophthalmologist who was involved in a trial and had drops supplied by Allergan for the trial, but I am not sure if any results have been published yet.

You might be interested to know that cyclosporin eye drops have been on the market for veterinary use for some time! I had a patient who used to get them for her dog at £30 a bottle. She was on hypromellose drops herself, so eventually decided to share her drops with her dog as she couldnt afford cyclosporin! I dont know if there are any issues with long term use with cylosporin being an immunosuppressant.

I just want to make it clear that the KC group don't in any way suggest or endorse the idea that anyone should use any prescribable eye drops or other medication without themselves having been prescribed.

Hi Alay

When my Atopic Keractoconjuctivitus was first diagnosed it had got really bad .
So in April last year i started taking 60mg Prednisolone and 200mg cyclosporin with opatanol drops and FML drops. As you can imagine this worked well!!
Onc the eyes settled down i then tried cyclosporin drops [human form] but they stung like mad, i mean real pain.
I then tried the veterinary cyclosporin[Optimmune]this was no better and irritated my eyes.
So it has been suggested that i try Restasis drops and have private prescriptions to get them. Its just not easy to get them.

When i was taking oral cyclosporin i had to have blood sugar and blood pressure test weekly and and two weekly blood test.
But my eyes were white, bright and didn't itch at all
I only use drops now Opatonl and FML twice daily, i just need something to keep the AKC at bay.

Anne

Anne

John,

I have a prescription and will have to send it off to be able to get the medication.
The prescription is from John Dart.
Sorry if i have asked a awkward Question.

Anne

Anne
I'll try to contact the chap who was doing the dry eye trial and see if he can help sourcing the Restasis drops and let you know in a few days.