DMEK experience

[space_cadet]

Glad to jear its not a filament n your regular team treated you with respect and dignity. The only thing i purchase direct from RNIB is my canes and cane tips as i like to use a coloured over a generic white cane n RNiB can get them cheaper than I could if buying direct , everything else they sell is over inflated prices or “disability tax” on top. My talking kitchen n bathroom scales i got elsewhere for a fraction of what RNiB charge. Tbh Im not a fan of any charity or group being run by people without direct experience of who the charity is for …

[Green]

Yes I really do appreciate it, helps us through the process, I wish all doctors knew how much difference it makes.

It's not defensible of charities I agree.

[Green]

I can recommend what my doc added yesterday to all my drops, Chloramphenicol ointment. That with the Hylo-Forte helps create a thicker barrier just as he said for helping with erosion pain.

[space_cadet]

glad to hear you have a action plan, did they suggest something called iLube for the filamets as that helps break them down n prevent them (in theory, but for me it didn't work butthat is a decent option for many who it does work)

[Green]

Yes I'm already on iLUBE, Acetylcysteine, dexamethasone, Moxifloxacin

[Green]

Ps I mentioned I knew of autologous serum drops in case that ever needs to be considered

[space_cadet]

AS is a last line of attack when nothing else works due to cost etc, Iv actually just spoken tk Liverpool half hour ago n ordered my next batch for delivery next wed so need to get googling for Science experiments for my 9yr old to do with the dry ice they come packed with.

[Green]

Crikey that does sound very expensive but so worth it for you.

[space_cadet]

i had tried everything and anything for years nothing helped so was last chance saloon type situation for me n thankfully they help more than I can put into words

[Green]

I'm so relieved for you, and it massively reassures me too