DMEK experience

[space_cadet]

Moorfields have a eclo! And i find it staggering that RNIB have said their are no eclo in London

[space_cadet]

I just found this page rather easily and at the top is a phone number for the ECLO team based at Moorfields

https://www.moorfields.nhs.uk/content/p ... ounselling

[Anne Klepacz]

I don't know who spoke to you at RNIB, but ECLOs aren't in 'an area' - they work in hospitals and Moorfields has several. There's usually someone at the Information Hub just by the main entrance to the clinics on the right hand side (not the A&E entrance) or if that's not manned, then there's an office just at the beginning of the corridor on the left of the main entrance. Sorry, when I suggested the ECLO at Moorfields I assumed you knew where to find them. So glad you've had a friend to help this week. And I'm hoping that it's tomorrow that you see your regular team at Moorfields. You're having such a tough time.

[Green]

I didn't see that page Space cadet, only a downloadable page when I looked before Moorfields east or something.
Sorry Anne I wasn't aware of them even though I've walked down the left hand side duh..
Yes my team thank god, I'm really exhausted by this pain

[Green]

I'm rather staggered by RNIB and vouncil team

[space_cadet]

tbh iv had overall a negative experience when I have had contact with the RNIB in, the past, so what you report by them doesn't shock or even suprise me x

[Green]

They're a very rich charity. I've heard negative reports about their employment of VI people and that many items they sell are cheaper elsewhere

[Green]

Saw my team - they are good - the Fellow is really nice, answers questions, acknowledges pain etc. I didn't get that with my previous firm.
It's a small erosion, no filaments today, hoping in a few more days less painful before the re-bubbling next week because I know its 3 days pain after that, some of my worst fears put into perspective.
RGP in other eye is a bit gripey I think its because the painful is closed a lot so that impacts on how I hold the other eye.

[Anne Klepacz]

So glad today went well. It's amazing what a difference good communication makes! Wishing you all the very best for the rebubbling next week.

[Green]

It definitely helps Anne.
Pain back with vengeance right now, just praying that eases tomorrow