Intacs/Xenia yes or no ?

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Sonia12
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Vision: Graft(s) and spectacles

Intacs/Xenia yes or no ?

Postby Sonia12 » Sat 21 May 2022 10:56 pm

My son is 22 , had cross linking on both eyes 5 years ago, one eye has progressed. Glasses don't help and can't get decent lens fitted and the wait just ridiculous at the hospital. Considering going private for Intacs, can anyone advise me on this. I have also read up on a new procedure called Xenia corneal implant which apparently is less invasive and has better results. Not sure if this is being offered as yet !
Anybody else heard of this ?
Thanks Sonia

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Anne Klepacz
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Re: Intacs/Xenia yes or no ?

Postby Anne Klepacz » Mon 23 May 2022 11:28 am

Someone else was asking about Xenia on this forum last year. viewtopic.php?f=1&t=16866&p=77022&hilit=xenia#p77022
It seems to be a very new procedure so as Graham says, I'd be cautious about it. Intacs work for some people, but also have their drawbacks. They don't do anything to slow progression and I remember a consultant at one of our conferences saying he would only use them if the keratoconus was stable. In a few cases, KC can progress even after CXL. Has the hospital suggesting re-doing the procedure? The way Covid has affected waiting times in hospitals is very frustrating. I don't know whereabouts in the country your son is, but one option would be to go to one of the KC friendly opticians for lens fitting. Have a look at the list on our homepage https://www.keratoconus-group.org.uk/in ... ometrists/

Sonia12
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Posts: 3
Joined: Sat 21 May 2022 10:10 pm
Vision: Graft(s) and spectacles

Re: Intacs/Xenia yes or no ?

Postby Sonia12 » Mon 23 May 2022 7:54 pm

Thank you for your reply, his eyes are stable at the moment, the hospital have offered him a corneal transplant but i have been warned against this at by an optician and feel like the would only be a last option. I have made a consultation today with regards to Xenia so will let you guys know how it goes. It seems very expensive but at least it can be reversed if need be. Thanks for your help with links for our local KC friendly optition too


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