Hi all
How do people deal with the mental challenge of having KC? i seem to constantly think about it and barely a moment passes where its not on my mind.
I generally get on fine with contacts but its difficult to not think about it all the time
thanks
Question
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- Regular contributor
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- Vision: Contact lenses
- space_cadet
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- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
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Re: Question
nope if honest I just go about my day, my lack of eyesight and visual disturbances are a small part of my day to day life.,
there is sight related counselling available for free via teh RNIB maybe give them a call on their helpline and ask to refer yourself? I had some sessions iwth them when my KC left me registered as legally blind / severely sight impaired over a decade ago and it was incredibly benefitical to me x
there is sight related counselling available for free via teh RNIB maybe give them a call on their helpline and ask to refer yourself? I had some sessions iwth them when my KC left me registered as legally blind / severely sight impaired over a decade ago and it was incredibly benefitical to me x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
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- Keratoconus: Yes, I have KC
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Re: Question
Hi Kieran, I struggle with it, with lenses, the prospect of graft failure, more surgery, I greatly fear being permanently SVI in both eyes on a permanent basis, I experience panic, anxiety, depression. I also find it difficult that we don't have official recognition of variable impairment ie without lenses, before/after surgery, it would help if services gave us a card, something. Only today Claire Sisko on the news as a registered blind person speaking about being called a faker because of makeup, using a phone, so what chance does variable impairment have, even less.
What I've found helpful is not deny how I feel - however we feel is justified - we're not obligated to be stoic, be positive. I feel forcing that makes me feel worse.
So I have bad times, but I've also learnt to shelve it as well, because I can't be immersed in it 24/7.
What I've found helpful is not deny how I feel - however we feel is justified - we're not obligated to be stoic, be positive. I feel forcing that makes me feel worse.
So I have bad times, but I've also learnt to shelve it as well, because I can't be immersed in it 24/7.
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