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General forum for the UK Keratoconus and self-help group members.

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Joined: Sat 22 Jan 2022 11:02 pm
Keratoconus: Yes, I have KC
Vision: Spectacles

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Postby Szd_khan » Sat 22 Jan 2022 11:13 pm

Hi I’m in my 40s and have had KC since my early 20s I have tried hard rigid lenses in the past I couldn’t get use to them so gave up on them years ago.I use spectacles now how ever in the last two years I been having real problems with my vision at night,I have heard about scaleral lenses and want to give them a try,can any one help me as to how I go about getting these lenses on nhs I live in Scotland

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Lia Williams
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Joined: Thu 16 Feb 2006 5:27 pm
Location: Surrey

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Postby Lia Williams » Sun 23 Jan 2022 1:06 pm

In the last twenty years or so that have been many developments in contact lens design. So it would be worth to see if you can find a more suitable lens.

There are now specialist soft lenses, mini sclerals and hybrid lenses for keratoconus. Even small rgps can be made comfortable by piggybacking with a soft lens underneath.

To have these lenses prescribed on the NHS (assuming that the system is the same in Scotland and England) you would need to be referred to a hospital eye clinic by your GP.


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Joined: Thu 17 Aug 2017 8:05 am
Keratoconus: Yes, I have KC
Vision: Other

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Postby RedOnion » Sun 23 Jan 2022 4:57 pm

I’m in Scotland and, as Lia says, the pathway was a referral to the hospital through my optician (the GP can do it too) and I was thereafter referred from there to an optometrist specialising in KC and got lenses that way.

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